Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
Sorry folks, nothing to see here. Move along.
This isn't the first time we've heard of neuromodulation working as a treatment for tinnitus. The problem is that the fix has always been temporary. Perhaps lasting only a few minutes. Slapping a battery on our skulls seems like an interesting progression of the treatment.
I said what I said based on the comments regarding Dr. DeRidder claiming that: " I have to say that a "cure" has been found by Dr De Ridder", when there was simply a collection of treatment approaches that have been around for some time, etc. etc.
I apologize for the dismissive tone I used. I do, however, wish people would not use the term "cure" loosely as it surely messes with peoples' expectations.
People should certainly check out a whole variety of approaches like i have including TENS and neurofeedback in which I practiced both for a good time. Perhaps my less then positive experience has contributed to my attitude. rTMS was once on my list as well until I had the company send me there outcome research data. Results were poor at best.
Honestly, I am very high on vagus nerve stimulation (Microtransponder), and we still don't know the final outcome on AM-101 or Neramexane.
My name is Sampson Parsons. Seriously. I'm the guy who had the successful implant, and then had it removed.
I have found new relief though. One of my surgeons was telling me after the explant surgery that some tinnitus is caused by even a slight, unnoticed hearing loss. He (Dr. David Friedland) said our brains will make up its own noise to compensate for a frequency loss, no matter how small, that it's not getting from the environment. (But our brains don't realize how annoying it is.)
So I said I'd try hearing aids to add whatever frequency my brain might not be getting from the environment. As soon as I put the demo aids in my ears, the tinnitus wnet away. It comes back immediately when I take them out at bedtime.
I told the research nurse about my experience and asked her to pass it along to the other 7 participants in the implant study. One of them tried hearing aids. It worked for him too. But a woman I corresponded with tried hearing aids, and it did not work for her.
Please try hearing aids, even if you do not think you have any hearing loss. It may be so slight that you aren't aware of it.
The upfront cost, just to try hearing aids, is about $100 for the audiology exam. The demo aids can be tried for free in the audiologist's office.
This will not solve everyone's tinnitus, but it could solve some cases. Please, it's worth a try.
Take care,
Sampson Parsons
What Parsons had was Deep Brain Stimulation, and though the implant company went out of biz, there have been similar successes with a Medtronic device that works for Parkinsons and tremors. Dr Steve Cheung at UCSF is the researcher. It's invasive alright -- but disrupts the network at a place in the brain called Locus of Caudate, discovered by a stroke victim analysis. I've turned this one down for now -- too invasive and no real protocol for electronic stim. Implantables are growing in general -- Check out Envoy Esteem for hearing loss without hearing aids. T can be beaten, but they needs to figure out how to do it outside the skull please...:) And please forget SmartBrain & Health doing Transcranial Magnetic Stimulation in Santa Monica -- or anywhere else you see Neurostar owners advertising. This is another dry hole, and the studies bear me out. Few responders and very temporary. Hang in there and get habituated via TRT, relaxation response, CBT, Valium (judiciously now), mood-lifting music, staying busy and positive, and any other tools that work for you. More good stuff is coming soon.
17 year ago, in our UCLA tinnitus class, many Tinnitus patients, went ahead and purchased them, and it really did help them.
Any surgery that cuts into your head, close to your brain, or in in or around that area, is not a good solution, to resolve out Tinnitus problems.
But if the the tinnitus is in both ears, you might want two hearing aids, to help with TRT, or partial masking