this definitley isnt the place for me your tryin to tell me that because my son is alive means i shouldnt seek support! going thru what i go thru is just as tramatic as what it would be like if i would have lost him it dosent make it any easier you know nothing and im not looking for anyones sympathy i thought there would be people here to share my experience with i dont need your sympathy believe that you cant do nothing for me you must just want sympathy your a selfish person and you sound ignorant thats last im gonna say

and minor similarities no minor differences major similarities

Ormosen... you keep saying the same thing over and over and over again. This group is a SIDS Support Group... WE have ALL lost our children. You are lucky and you still have yours. I think you may have come to the wrong place as we are all still grieving and mourning the losses of our children.
I think this whole banter is getting out of hand and whatever your doctors called it, is not what is in all the current studies that have been done. Did I mention that I work in a hospital so have very good contacts? Oh wait and my best contact ever?? Well she is a lady in her 60's who has done COUNTLESS research on different kinds of infant deaths. When I asked her for all her information there was not one mention of near SIDS. This to me is not getting anywhere. I have asked you a few times to tel lyour story in depth, but you never do... maybe if you tell it we will understand. But really you should not be sitting on here going back and forth when you could be spending precious time with your child... the precious time we all wish we had!

You 2 ladies... are you sure you are not one and the same?? YOU ARE RUDE!!! Your situation and our situations are totally different!!
Have you had to bury your child? NO! Have you had to tell everyone you see that your child has died?? NO!! Have you had to spend countless nights wondering why your child had to die??? NO!! Did you have to go through the investigations that most of these women did??? NO!! SO SERIOUSLY LET US MOURN AND P*** OFF WITH YOUR IMMIATURITY!!

I agree with gingerello, i think these 2 ladies are actually the same person & the statement
" going thru what i go thru is just as tramatic as what it would be like if i would have lost him "
is so absurd & offensive it is hard to even respond to.
I THINK YOU OR YOU BOTH DEPENDING ON IF YOU WERE TWISTED ENOUGH TO MAKE A 2ND PROFILE NEED TO FIND A DIFFERENT GROUP BEFORE WE GET DS INVOLVED! You are obviously doing no one any good & I am requesting for the last time that you not participate in the SIDS community.

you know the immaturity comes when people lack the common sense to see that our situations are extremely similar i did not come here to take away from your mourning and your greif we should not be treated differently because our babies have survived it is still a struggle and a very tramatic experience and yes i did deal with investigations and questions and aqusations
and numerous examintions to eliminate the aqusations and it was hurtful i have to ask my self why does my child have to suffer why did this happen why cant my baby drink a bottle why cant my baby say a word why cant he walk talk sit crawl roll over smile suck a pacifier play with his brother and sister why cant he break my nic nacs why does he throw up his food every day all day why dosent he gain weight why at 1 does my baby only weigh 15 pounds and it is very upsetting yous are making it seem like oh my we are not allowed to express our experiences because our babies didnt die and its wrong because had they not survived they clearly would have been sids cases so it dosent take away from the facts that the same thing that happened to our babies happened to yours so why do we have to be singled out because they miraculously survived? yes the outcomes were different but equally tramatic and i came on here because i wanted to see if there were any similar cases like my sons case not for sympathy or for anyone to make my experience sound unimportant or less tramatic because in my case my son is here and i see the hurt and the pain he goes thru everyday it doesnt mean hes happy go lucky so dont make my situation sound so great !!

I'm glad that you have come to DS for support, this is a really great place and there are alot of really great communities to join. This one may not be the place for the two of you, you still have your children, to try and compare yourself with us is not the same. I read that the two of you should join your own page, Good luck with that. If you decide to send another message can you at least spell correctly so we are not confused by what you are saying.. Maybe thats where the confussion started.

i find that funny, our story's are the same because our kids lived threw it. My son's name is Damien born January 3rd 2006. Just caz you can't deal with not knowing our sids of SIDS you think that we don't belong, Just caz we still have our kids dose not mean that in ways we have not lost them

please get DS involved, sorry that you can't understand what we are going threw.

And you OBVIOUSLY can't understand what we are going through or you would have left us in peace by now.

I am sure that your experience was very traumatic and difficult. I never once said any differently. I am sure it is a struggle for you as it is for us, but it is a different kind of struggle. I have tried to be as polite as I could be, but this is getting out of hand. No one is condemning you because your child lived and ours didn't. We are merely saying this is not the right support group for you and you should look elsewhere. Lastly, regardless of whatever differences of opinion we may have on the subject we are all mothers who have gone through a heartwrenching experience and there is no need for all the namecalling. I was not being selfish or ignorant in any of my comments. I was trying to put an end to all this bickering to prevent any further grief for anyone here.

I agree with Gingerello and Leosmommy, in that I think you are both one in the same person and this little game of yours has got to stop or DS will be notified and you will have no choice but to leave.

if you don't like what is being said why do you still reply i tried to reach out thinking that people out there are going threw what i am going threw. and you think that you can tell me what i can and can't say on here. I am happy that i found someone on here i can relate to. If you can't deal with it then stop replying to this.

Ever bothered to ask he what happen to he child? no because you don't understand.

I'm sorry what is knowing our sids of sids? (your 10:43) reply..

OMG... going thru what i go thru is just as tramatic as what it would be like if i would have lost him " ....ARE YOUR FRIEKING INSANE?

"had they not survived they clearly would have been sids cases ".... that like saying...YA AND IF MY GRANDFATHER HAD BOOBS HE WOULD HAVE BEEN MY GRANDMOTHER... they survived so you can not even compare with... well if my babies died of sids them it would have been sids ..once again OMG you are 2 ignorant women or 1 as I really think the case is.

oh and the fact that your baby cant say a word , your baby cant walk, your baby cant hold a pacifier try this one....I will never EVER hold my child again, I will never EVER smell my child again, I will never EVER hear my child again, when you experience that , and God i hope you or any other arent ever does again, then come a mourn with others that underdstand and get what yu are going thru.