Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
People just don't understand how hard it is to live with RA, without adding to the burden. Maybe she feels you are unavailable, or wrapped up in yourself. If so, it's because no one can understand the pain and being disabled. I was lucky, my daughter was compassionate. She started dressing me, brushing my hair when she was only 10. It was too demanding on her, but I had no options even for home care, because I was not properly diagnosed. She did end up becoming a social worker, to help kids.
As for your daughter, Maybe something is going on in her life to upset her? Or maybe that you are leaving for the winter again?
Hugs and I will keep you in prayer!
Yes, some dialogue with her is definitely needed.
some of my family members i love in a more responsibility and respect kind of way. in other words I just do because i have to but said family members (in my family) who suffer from varied types of mental illness and deny my reality are not part of my own care team.
I take care of them. they do not take care of me.
when my family members talk like this (i have a couple with psych issues) I don't allow them to make me crazy.
they can't comprehend anything other than their own stuff.
my recognizing that is liberating. i swear that they are not what is that word, you know wilfull. they are just not mentally able.
it sucks my having to recognize that but I substitute best friends for each of my mentally ill family members and I do for my best friends and they do for me. family can be created I have found.
do you have your own therapist? what does he or she say?
hang in there.
depot
I think we all need a thread devoted to sweet and funny things. How about it? I'll start it. I'll call it, "Need A Giggle?" And I hope everyone will contribute because I could use a good laugh.
That said, words hurt and I'm sorry that you have to deal with this on top of everything else :(
Repeat, rinse!
But some people, particularly the bipolar 1's get insight into the need to take their meds, particularly if they are hospitalized involuntarily for being psychotic. The bipolar 2's don't have this built in reality check, except for suicidal depression.
I have a life time friend, who I just found out in August is bipolar 2. I don't know how I didn't see it earlier, she had all the symptoms. When people with bipolar disorder get older, and they are often unmedicated, they become severely depressed. But then, when they are put on meds and stabilized they go off as this old friend did. She hated the drugs, said they caused terrible weight gain. (Some do!) But when I saw her, it was like the light had gone out in her eyes. She needed those meds, but to start them at 65 or so was really a tough go, especially because she was always a rebel. And bipolar disorder can also cause memory loss leading to dementia if it is not treated. Maybe something to tell those unmedicated bipolars?
Sorry to turn this into a rant about bipolar disorder. I just thought I would share a little, in the hopes it might help someone here deal with family members who are off the wall in the way they treat you. With RA, the pain pushes you to get treatment, esp. when it works. With bipolar the fun pushes you to not take meds. Very sad!