Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
and I was in a bad way before that. I have OA too so it was hard for me to know , which was which pains.
I'd say moderate disease for me ; my current doc says mine is very aggressive but though my pain is outrageous and dibilatating, thus far my exrays show only mild damage. (thank you God)
I really want to say Moderate/severe disease , is what I have.
but considering my xrays I figured I don't equal that. (?)
*plus I know it's wrong to compare myself to someone but met a nice older woman the other day and she has many joint replacements in her fingers & toes and that made me feel not so progressed in comparison.
my RA is in my feet/ankle/wrists/thumbs/fingers, ribs/jaw/neck and knees.
I have been on 6 pills mtx, enbrel weekly and hydroxychoroquine twice a day for almost two years. My xrays have so far been normal. Next xrays may be different. My hands are looking different to me. Its noticeable.
I would say my RA is now not as controlled as it has been. I also have developed Fibromyalgia in the past year. That brings its own challenges.
I would declare myself to be a moderate case.
Sometimes I try to imagine what I would be like without my enbrel,mtx, etc and I CRINGE. If I went back to pre-med state: bedridden would be my status.
I have also taken prednisone for long stretches. Not doing that anymore.
I have trouble with ankles, hips, jaws, hands, fingers, chest, feet and toes, elbows, shoulders, and wrists.
Forgot to mention I do take a low dose Percocet when things get out of hand.
Jess
I choose to walk around the longer path to avoid stepping up on curbs or using steps. I no longer know what is reasonable to expect from my body as far as how much healing may occur. All that matters now is how today is, and today is okay.
Medications (so far): Methotrexate (without good results), prednisone, Norco
My function is probably about 50% compared to a year ago, severe pain in the mornings until pain meds kick in, mild pain throughout the day. Fatigue is severe.
My dad: just want to add his experience to this discussion. Diagnosed at 49 or so, like me, as having Mild RA; still having symptoms at 90 when he died. Stayed "mild" his whole life -- meaning confined to one joint, his wrist. Had surgery on it in his mid 50s. Struggled with RA pain all his life, tried lots of things (alternative and conventional) but was helped most by low dose prednisone.
At 90 my dad had carpal tunnel surgery directed related to his RA. He was having terrible pain in his wrist. He died soon after of unrelated causes.
I so wish I had inherited my dad's "mild" RA, even though that was no picnic. But I don't think his RA ever burned out, even at 90. But... he was very active until the end of his life, lived independently, and his mind was incredibly sharp.