Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
The graph paper helps to measure swelling. After I brought in my first round of photos, my doctor suggested the graph paper for future ones.
NNS2? FFO? Really?
And I'm not sure what's surprising about the graph paper; it's an easy way to show the amount of swelling in my fingers. Sadly, one finger has widened nearly a full square. I don't have the dexterity now to measure my fingers the way one might measure for ring size, but I can place my hand on the paper and check that way.
It also helps to show the deviation as the fingers begin to twist. My right ring finger has changed from straight to bent, and the graph paper shows it clearly.
It's like a police mug shot for my hands, you know how they photograph people standing next to a graph that measures their height? Only in my case, it's hands, and they keep changing.
It does help me, and it IS great. Thanks for your concern!
Katie, I was simply expressing surprise about graph paper photography for your hands. I hope Your deviations and swelling remain small and the your rheumatologists aren't hair-splitters!
The acronyms were just my petulant reaction to another reference to frankincense. There are dozens of articles that promote its anti-inflammatory properties, even a few scholarly articles and one person on this site that promotes its use. I simply have a terrible reaction to many essential oils, including FFO. Worse, yet, I had a massge with FFO infused massage oil, and found the reaction wasn't just to the aroma but included a rash. It might as well been snake oil! :)
Sorry for hikacking your discussion again, bannc2000, and I hope you find some good infor by searching old posts.
But you are on DMARDS, right?
Beth, I know there's gloves with built in warming agents used by hunters and athletes, so it's not unreasonable to think there might be something out there with a coolant. Seems that sports medicine specialists might have something. And I can understand the idea of a glove that straightens fingers out at night - I've wondered the same thing. Like, orthodontia for my hands!
Californialynn - I'm not on any medication yet. I guess I'm still a little bit in denial because my doctor says I have seronegative RA. I guess I struggle with black or white thinking....like, because there isn't one definite result that points to RA, then I don't have it. But, instead, I have a bunch of possible results that could point to RA, but it's not 100%.
Katie - orthodontia for hands is perfect, lol. I'll check with some of the local PT companies to see if they have built in coolants or something that might do the same thing. Thank you!
I wear wrist guards at night, and to do work around the house and garden. I have 5 pairs, some strong, some cushy, and some give less support. That might help you.
Sero-negative is usually worse in hand and feet, whereas sero-positive is more the bigger joints. Of course, when you get really bad, with sero-negative, it hits all the joints. Which is why you need to get on a DMARD right now! Pain is a sign of damage happening. Damage cannot be fixed, surgeries never give you back perfect joints.
The new protocol is to hit it hard at the beginning. Then it will be less severe in the long run. That didn't happen to me, 20 years ago, now I am ultra severe. My rheumatologist says I amd the worst case of RA he has ever seen. Not a trophy
Things are black and white to me, too. But here's how I saw it:
I have a problem that's interfering with my life.
I want my life back. DMARDS are the only credible answer.
Whatever your fear is about the drugs, you need to get over it. You have to knock RA down fast, the earlier the better.
Voice your fears here. We members can help you get over it.
*My hands/wrists started hurting all of a sudden in November, and I developed trigger thumb out of the blue. I had a cortisone shot for my trigger thumb and that helped, and hasn't been a problem since. However, my hand pain/swollenness/stiffness hasn't gotten better; it's gotten worse.
*My fatigue is like a roller coaster. Some days I fall asleep at my desk at work which is awful to say, but I can't even help it, it's extreme. Other days I do a little better and have more energy.
*My hs-CRP (low level inflammation) is 9.6 (high) which my Doctor says translates to normal in CRP, like around 0.08.
*I have a lot of hypothyroidism symptoms as well (weight gain, fatigue, always cold, no energy, memory loss, etc.).
*Elevated TPO antibodies which from what I read can be high with RA.
*Recent x-rays of my hand show some small joint erosions.
I feel like there are a lot of subtle signs but I wish there was one specific test that would say "yes, you have RA!" I hate taking medication, but I will once I know for sure I definitely have RA. I guess I'm just waiting for a sign or something.