Gary, I appreciate your comments. I really took a slap down with those flu symptoms for 2 weeks, but am getting over that now. Lost about 9 lbs, couldn't eat much or keep fluids down for days at a time, but I work 3-4 days week, and seemed when I was really sickly, it was on the days off I didn't work. I am going to 3 days week, gives me 4 days to rest and recover..lol Just have to keep my insurance, it has been a GodSend. I hope all of you have a great holiday, and enjoy better and better health. I have gained some weight back now,and feel stronger, have excellent employer and co workers so expect to continue as I have been. I try to rest as much as possible, family helps with work at home, so all is well.
Thanks for all your comments. Rosa

The slight anemia was more this past 6 weeks, I spent all day in the hospital getting 2 units. I go Monday for the CT scans will find out more then, have no idea how I'm losing that much blood, guess it will finally be found with the scans, still on Votrient, hoping to stay on it a good while.

I have been on Votrient for 11 months after having started on Sutent following my surgery to remove my right kidney and replacement of my L2 vertebrae. I could not tolerate the side effects of the Sutent. They started me at the 800 mg dosage and have dropped it to 400 mg because of my low tolerance to the side effects. It is more tolerable now at the lower dosage but the side effects still exist:

Nausea
Fatigue
Poor taste - metallic taste to a lot of different foods

The nausea and taste are most bothersome to me. I take anti-nausea meds but none seem to alleviate the problem. So, I tolerate it. I am going to stay with the Votrient because it has stabilized the tumors that are in my hip/pelvic area.

My hair has turned almost completely white. I'm 65, though, and have had some compliments on my hair so I'm not going to color it.

My prayers and best wishes to everyone!!

Mike

Gary,
I have been on Votrient for 17 mos. now. My side effects are:
All body hair went white (I was silver gray already!) But now am seeing some thinning of my hair, and have noticed small bumps on my scalp and forehead area that seems to be a hair folicle that is not right.
I require and lot more rest, but work 3-4 days a week, 8 hrs. usually 1-10PM, afterwhich I require the next 3 days for rest! Have some cramping, still showing blood, have had 2 units in transfusions to correct the anemia. Also, I have very bad leg and hand cramps, usuallly at night, but not always. Other side effects, I can take care of with anti nausea or imodium when it gets bad. But, I had a very good report of shrinkage from Oncologist last month. So I just pray I can continue getting good results.
Best to you and all,
Rosa

I have my 2nd event of RCC (took a kidney in 09) came back a few weeks ago. Now on Votrient. 70 y/o and already gray. 1) When does the hair go white. 2) Any recommend for indigestion or feeling full even w/o eating? 3) Any help w/exhaustion? 4) How long have some of you been on Votrient or others?

Thanks and prayers for all, This is the fourth cancer (2 bladder in the 90's) and I refuse to give in to any thing but living every day to the best I can.

hey LBHall
I have been on sutent for 10 months the only hair on me that turned really white was facial hair. For fatigue my wife makes me a smoothie with 8 ounces of POM juice, half a banana and a cup of either mixed fruit or blueberries and 2 scoops of Visalis. Visalis is a powder mixture of vitamins, protien and not sure what else but it seems to help because I can sure tell on the days I don't drink it. If you have trouble finding it let me know and I will try to help. dprochello@longlines.com

Hi All,
I have been on Sutent for three years now I have brain and Lumbar spine Mets. All have remained stable thankfully but no shrinkage. I will be happy with the stability. Site effects were manageable. After the brain Met was diagnosed they told me to take Sutent on a continuous basis (25mg) and undergo stereotactic radiotherapy this was successful giving substantial shrinkage ( thank god) The continuous dose has given me real problems with diarrhoea. Which I had not experienced when I was on a higher dose and took a breaks from Sutent . The consultant today they have now suggested I change to Votrient on a continuous dose. I have now got a decision to make. Not sure if I will be exchanging one set of effects for another. Is anyone on a continuous dose?
Help

Lynn

Hi, everyone. My name is Wyatt and I'm writing this on behalf of my fiance sky. She is only 28 years old and has advanced renal cell. Her kidney removed and now has three tumors in all three parts of her spine. I can't remember all the names the lumbar syactic and something else. Sorry for rambling but she has been on votrient for a month now and has shown severe foot swelling and blistering pain. And anyone experienced this? She also has had quite a few bad nose bleeds as well as extended heavy menstrual cycle. Can anyone relate? Or have any advice to get her feet to not hurt so bad?

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