Renal Cell Carcinoma (Kidney Cancer) Support Group

Renal cell carcinoma, also known by a gurnistical tumor, is the most common form of kidney cancer arising from the renal tubule. It is the most common type of kidney cancer in adults. Initial therapy is with surgery. It is notoriously resistant to radiation therapy and chemotherapy, although some cases respond to immunotherapy.

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  • JerseyGirl5

    Newly diagnosed with Stage 1 RCC

    Hello, In January 2017 I "accidentally" found a 1.5 cm enhancing leasion on my left kidney through a CT scan I had for another issue. I had a partial nephrectomy on my left kidney to remove it 10 days ago.  This is all new to me but I feel pretty good and optimistic.  They told me that there is only a 5%-10% chance that it will come back.  It is still a little scary though.  Any advice to...
  • So my 31 year old husband has been diagnosed with malignant papillary renal cell carcinoma. He has about 7 tumors varying in location in his abdomen. In 2016 he was originally diagnosed when they found a large tumor on one of his kidneys and he had undergone a patrial nephrectomy. We knew that his cancer would more than likely come back as he was also found to be positive for a genetic mutation...
  • my mom is 86. She lives in a nursing home. She has had colon cancer 7 years ago and has a colostomy bag which she can no longer maintain. She has dementia and has recently become bed ridden and incontinent. Last week she was sent to hospital with abdominal pain and fever. During an ultra sound on her very sick gallbladder they discovered rcc. She is dnr and doesnt want any more procedures...
  • mlr0853


    That this group would be more active, thus more supportive with daily concerns of medical and mental health support of current cancer and those who have been through treatment. ML
  • Sandylapper

    Dealing with Esophageal Spasms

    My husband was diagnosed with RCC a couple of months ago and has been undergoing radiation treatments and was started on Sutent.  On the first round, he made it about 3 weeks, but he had such intense side effects that he was taken off at that point and took 2 weeks off.  During the 2 weeks off, he was finally able to eat again even though the food still tasted off.  Now, he's a little over 2...
  • AlwaysBelieve

    Nerve damage afrer partial nephrectomy

    Has anyone experienced nerve damage after surgery ? I had no feeling for a long time then the feeling came back along with stabbing pain and awful burning pain. They told me they nicked the nerve and that was common. I am now on medicine and patches but this pain is controlling my life it is awful. They said it could take weeks or months to heal.Has anyone else experienced this and does it go...
  • 1worriedwife2017


    my husband was diagnosed with rcc on feb 2 2017. Stage 4 which spread to brain and liver.  He had brain tumor removed and a second one treated with radiation.  Tumor is to large to remove his kidney. So he has been put on votrient to attemp to shrink it some.  Prayers appreciated!   Anyone have really good results with votrient? The first scan will be May 2   Wish us luck
  • mariaesta

    Immunotherapy for RCC

    Hello, everyone!Earlier this year, my father was diagnosed with stage 4 RCC. One of this kidneys was then removed. An MRI after the surgery showed that there was a spread in his spine and lymph nodes around the kidney, although the doctor was optimistic about it since he said the bulk of the cancer was removed and only specs of them were left. This gave us a lot of hope.They started him on 4...
  • greystone2

    looking for stories of NON recurrence

    I had a partial nephrectomy 7 years ago for a stage 1 (grade 3) 2.5cm tumor. I'm looking for encouraging stories of people that are many years out without a recurrence. Seems like most stories online are the bad stories. Looking for positive ones. I've had a great 7 years - and now have two small children - and the though of recurrence still weighs heavily on me.
  • MDLF

    New Therepy for Renal Cancer

    My husband has Stage 4 Renal cancer. It has metastasized to his brain, lymph nodes, lungs and bones. He is on Palliative Care but something amazing is happening; the tumors on his kidney and in his lungs are shrinking.The tumors in his brain are gone (radiation) and the tumor in his lymph node is stable. The lesions on his Hypothalamus and his spine are not growing but they are not getting...
  • tracy413

    Friend needs help.

    I have a friend who is experiencing kidney failure due to rheumatoid arthritis. She also does not have insurance, and is needing some assistance in her home for some personal care. She is in her mid 30's and now cannot work. Does anyone know of any resources she can access? She lives in northern Georgia. Thank you all.
  • Njones0623

    Son has RCC

    Hello my 39-year-old son had his kidney removed two months ago.  He didn't have extensive test afterwords to see if they got it all because he has crappy state-funded insurance.  Hes still feeling pretty lousy and can't understand why he still has a lot of pain in the area where the kidney isn't anymore so they took him in and they just did a colonoscopy and an upper scope in his intestines....
  • sam.b

    Research for Improvement

    Hello,I am a medical researcher looking for patients and caregivers to participate in a 45-minute webcam interview for those affected by renal cell cancer. Qualified participants that qualify and complete the interview will earn $100. This data is used to learn more about the disease, NOT to try to sell you anything. Please click the link below to take a brief survey to determine if you qualify....
  • Good afternoon.  If you have been diagnosed with Advanced Renal Cell Carcinoma, you may be eligle to participate in a one time confidential paid market research telephone interview.  You would be paid $175 for your time.  The purpose of this study is to improve education for individuals living with Advance Cell Renal Cell Carcinoma.  If your interested, please call Jane Walker @...
  • cizzle23


    Hi everyone,A 2cm mass has been discovered on my CT scan which is suspicious for RCC. My urologist has recommended a nephrectomy and I have been reluctant to have it done because of the recovery period and I'm pretty anxious about the procedure. I feel like it is such a small mass that maybe we should watch it. How was the recovery period? I'm 33 and very active. I'm also worried that I don't...