Renal Cell Carcinoma (Kidney Cancer) Support Group

Renal cell carcinoma, also known by a gurnistical tumor, is the most common form of kidney cancer arising from the renal tubule. It is the most common type of kidney cancer in adults. Initial therapy is with surgery. It is notoriously resistant to radiation therapy and chemotherapy, although some cases respond to immunotherapy.

2 Online
  • deleted_user

    Votrient side effects

    Hello everyone,I have been on Votrient for 25 months and wanted to start a discussion on side effects and what other cancer patients are doing.Here are the ones that are bothering me:Numbness in feet. General fatigue.Muscle weakness and shortness of breath when I work around house.I have found relief for most of the other side effects. Thanks for your input.CheersGary
  • sam.b

    Research for Improvement

    Hello,I am a medical researcher looking for patients and caregivers to participate in a 45-minute webcam interview for those affected by renal cell cancer. Qualified participants that qualify and complete the interview will earn $100. This data is used to learn more about the disease, NOT to try to sell you anything. Please click the link below to take a brief survey to determine if you qualify....
  • mlr0853


    That this group would be more active, thus more supportive with daily concerns of medical and mental health support of current cancer and those who have been through treatment. ML
  • Hi there... I am brand new to this support group. :)My journey started in August this year (one month ago).I am an avid mountainbiker - I love my mountainbike! I'm 45 yrs old woman. Fit, healthy, and according to my annual physicals, I am the poster child of a "healthy" person. Well, the rug was pulled out from under me in the most shocking way and my life has been turned upside down. All in less...
  • Njones0623

    Son has RCC

    Hello my 39-year-old son had his kidney removed two months ago.  He didn't have extensive test afterwords to see if they got it all because he has crappy state-funded insurance.  Hes still feeling pretty lousy and can't understand why he still has a lot of pain in the area where the kidney isn't anymore so they took him in and they just did a colonoscopy and an upper scope in his intestines....
  • I've found I can not tolerate 64oz of liquids a day. Because of my stomach issues/recent hydration need, I've come up with a new diet plan to incorporate 5 veggies and five fruits each day. To make up for the liquid, I am now making soup and fruit smoothies that I drink throughout the day. Now I drink 16 oz of filtered water (britia) thrughout the day. I also have taken out of my diet any...
  • My dad was just diagnosed with stage 4 papillary non clear cell carcinoma after having a nephrectomy several years ago and now it has returned in the other kidney and in other places as well.  my dad is my idol, my hero, and someone who has inspired my values and beliefs my whole life!  i would welcome any guidance, hope, prayers, suggestions, or words of wisdom that anyone might have to...
  • Hello I had my right kidney remove in 2012. I went to the E.R. for stomach pain and after having a contrast dye cat scan of my orgins they discovered a large mass on right kidney. Was shocked when dr came in to tell me this. I was admitted and met with a urologist the next day. It was a large mass, 8in by 8 in by 4in. the urologist said it had been growing for some time to be so large.I had...
  • jester18

    Surgery today

    I am scheduled for a robotic partial nephrectomy today, to remove a 2.5 cm tumor that is "probably" cancer. Wish me luck!
  • mlr0853

    New York Times:Medical

    While looking up information on immune system, I came across this website of NYTimes: is the site map for the Times:
  • StandUp2Cancer

    Dad - Pls Help

    My dad was diagnosed with advanced RCC.  We met with an oncologist this week and he prescribed him with pazopanib.  He said the drug was the first line therapy that people with kidney cancer receive.  He than said if my dad didnt react well to it there were other therapies we could go to.  He mentioned that there are various types of kidney cancer & that they were unable to identify the exact...
  • tracy413

    Friend needs help.

    I have a friend who is experiencing kidney failure due to rheumatoid arthritis. She also does not have insurance, and is needing some assistance in her home for some personal care. She is in her mid 30's and now cannot work. Does anyone know of any resources she can access? She lives in northern Georgia. Thank you all.
  • gfisher

    new here..

    Hello everyone.. I have been diagnosed as renal cell carcinoma.. clear type.. tomorow i go to kingman to do a ct scan to look at my organs since i have only had my femur scanned.. thats where they found the cancer.. I am so scared.. I am so afraid the scan tomorrow will reveal the cancer has spread to other organs.. as i have heard thats what it does.. I just needed someone to talk to since i...
  • angelaofria

    papillary renal cell carcinoma

    I'm 30 and was just diagnosed 2 months ago. A waiting open nephrectomy. Tumor is 7cm. Scared.. and just don't know what to do. Can't sleep at night because my mind is thinking of the 'what ifs'. And info or stories would be helpful. Thanks
  • imsure32

    Recurrent RCC after partial nephrectomy

    Hi, I am a 43yo female and was diagnosed with RCC in 2006. I had a partial nephrectomy and was good for the next 9yrs. I had a local recurrence in late 2014 with a radical nephrectomy done in January 2015. I just had follow-up ct's today and I will be getting the results back next week. I'm worried because I have had the same pain I'm having now, the first 2 times RCC was found. My oncologist...