Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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Diamox allergies?? (Sulfa Allergies)

deleted_user
deleted_user
Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went back to my neurologist because #1 I don't like him..My opthaolomologist said that my vision is not getting worse with the optic nerve swelling so that is good news since I go every 3 months. Just wondering if there is something else that I can do other than surgery? This has effected my daily lifestyle of hiking, and being outdoors. The topamax makes me very tired, and at times depressed. Since I have been on the medication I have not even wanted to exercise, and I have actually gained weight. My IH was brought on by the drug Doxycycline! Any help/advice will be appreciated.

Thanks!
deleted_user
deleted_user
I am on Diamox and I have a skin allergy to Sulfa. No throat swelling or anything, but I did break out with the Sulfa reaction skin rash for the first 6 weeks on the meds.

"Even" if you switched to Diamox, it makes me feel the same way you just described the Topomax so not sure it would help with living your life to fullest. :(

Don't want to be the downer, just let you know that Diamox might not fix you either. As the Diamox has not resolved my paps, and I'm am looking at eye surgery.
deleted_user
deleted_user
I too am allergic to sulfa. I tried the diamox anyway and yep- along with the skin reaction, I couldn't breathe. Some people that are allergic to sulfa antibiotics can take diamox. It sounds much better than surgery to me. It wasn't the easiest med to be on- the few days I was on it. But maybe it Is worth a try under close dr. supervision. Good luck!
Iafaforallergy
Iafaforallergy
It sounds like you’ve been dealing with a lot. Doxycycline is indeed associated with intracranial hypertension, and treatment can include options besides surgery. Topiramate is commonly used for IIH, but significant fatigue or mood changes are worth discussing with your neurologist. A specialist can also assess whether acetazolamide is appropriate despite a reported sulfa allergy, since the type of sulfa reaction matters.
Iafaforallergy
Iafaforallergy
It sounds like you’ve been dealing with a lot. Doxycycline is indeed associated with intracranial hypertension, and treatment can include options besides surgery. Topiramate is commonly used for IIH, but significant fatigue or mood changes are worth discussing with your neurologist. A specialist can also assess whether acetazolamide is appropriate despite a reported sulfa allergy, since the type of sulfa reaction matters.
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