Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
I don't want to be self-pitying or whiney but I am feeling totally overwhelmed tonight. I went for my 2 month check up today, I was shown the clot on the scan and it was huge. They're amazed I survived it,I know I should just be grateful that I did survive (and I truly am) but I just want to cry and cry at the moment.
He's sending me for some blood tests, he said some can be done while I'm on warfarin but the main one I have to be off it so that will be in a few months.
I'm scared of getting another but the whole "almost dying" thing is getting to me. I just wanted to get it off my chest to people who I know will understand :-(
Karen xx
He's sending me for some blood tests, he said some can be done while I'm on warfarin but the main one I have to be off it so that will be in a few months.
I'm scared of getting another but the whole "almost dying" thing is getting to me. I just wanted to get it off my chest to people who I know will understand :-(
Karen xx
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
On the plus side, my INR is stable and I have a whole month before I have to go back!!!! For a needlephobe like me, that beats winning the lottery every time :-)
Karen xx
I've really learned a lot from all of you. I think I was in a lot of denial during my first experience. I did not go through what many of you have described, but rather considered the whole ordeal a major annoyance. Very put out about all the blood draws, my blood seemed to taunt me as my INR tests went all over the map. I was ticked off about needing to focus on dietary and other lifestyle changes, and never seriously considered that I might have more clots. After 9 months, I got off Coumadin and tried to shrug off the whole episode. In other words, my attitude sucked.
Karen, you don't seem whiney or self-pitying at all....just in touch with your feelings. This thing threatens our very lives, and we are all fortunate to have dodged the death bullet. But, as one of you said, this is not the movies. We do not shift into full time gratitude gear, and it appears that this is a place to share a variety of emotional responses. Thank you for your courage, and to the rest of you, thank you for showing support for feelings other than "I'm happy to be alive."
To be certain, I am happy to be alive....and also feel frightened, vulnerable, and uneasy. Real feelings, not reel feelings.
Hugs to all of you...
I'm so sorry you've had to go through this a second time *hugs* I actually understand your atitude the first time. I knew nothing about clots, I wasn't in much pain (until the last few hours) and all I asked was "ok how do you get rid of it" I did have several people, dr's etc tell me how lucky I was but it was only once I was out of hospital and able to do some research that I realised EXACTLY how lucky I was.
This site has been an incredible help, just when you think you're going mad someone comes along and says "hang on, I feel like that too" and you're suddenly not on your own.
Karen xx
I can definitely relate. The emotional rollercoaster you go through with this is very trying. I had my P.E. a year ago Feb, it was the size of a walnut in my right lung, It can be very difficult and believe me, it is ok to feel the things you are feeling, we all have been there. When this happened to me, it hit me like a train. I always worked out alot, boxing, biking, weights, I couldn't understand why, let alone how this happened to me. I had trouble sleeping for awhile, breathing, worrying all the time.
I am not afraid to admit that I was scared when i was in the hospital, I had every negative thought you could think about,even when i went home on oxygen, but about 2 1/2 wks of home oxygen, I went in for a checkup with the lung doc, he said i was ready to come off the oxygen, i felt scared, but great, in a weird way.
You have to believe you will be ok. stay positive. Believe me, I know this is difficult. Be proactive with your health care, research your situation, arm yourself with knowledge. Keep searching for answers.
I am not bragging by any means, but It has been a year since my P.E., and i still get down sometimes, but, I am back to boxing, biking, weightlifting and all the other things i thought were long gone. I fought my way through it. Surround yourself with positive, encouraging people if you can. Another thing that worked for me was to adopt the word neverquit. When I get to thinking negative things, that is what I tell myself.
I am not trying to be a know it all either, just trying to help., just want you too know, to keep believing in yourself, think positive and try to focus your energy on the future.