Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hi, everyone. Posted this in DVT but I'm wondering if this is more a PE thing. I'm sitting her in an ER and wondering if anyone has any ideas on a strange pattern that has emerged. A quick history:
DV/bilateral PE a year ago (long plane ride, no genetic factors). Coumadin until last November then told I was free to go and have a nice day. Since then, this pattern I've noticed a handful of times has developed:
A dull ache starts in the the first PE spot in the middle left of my back, often after exercise on a treadmill. The pain gets worse and seems a lot like the PE pain, so much so that I usually can't sleep that night. The next day it hurts more and more. Hurts most on a deep inhalation. Then, about 24 hours later, my pulse will race for about 5 minutes and the pain will back down. It can happen again a half hour later and the pain backs down even more until it dissipates. What's going on?
Also concerning is that the level of intensity seems to be getting worse with each event. Tonight, the pain was terrible and I could barely breath during the heart racing part. I thought I would collapse in the wating room. 5 minutes later, my pulse had settled, vital were normal (100% O2 saturation!) but my blood pressure was a little high for me 150/58.
So, here I sit in the ER hoping I don;t get another CT scan. People at this sight have been such a wonderful combination of supportive and seriously smart and I've always appreciated the advice. Any thoughts?
Many thanks!
T.
DV/bilateral PE a year ago (long plane ride, no genetic factors). Coumadin until last November then told I was free to go and have a nice day. Since then, this pattern I've noticed a handful of times has developed:
A dull ache starts in the the first PE spot in the middle left of my back, often after exercise on a treadmill. The pain gets worse and seems a lot like the PE pain, so much so that I usually can't sleep that night. The next day it hurts more and more. Hurts most on a deep inhalation. Then, about 24 hours later, my pulse will race for about 5 minutes and the pain will back down. It can happen again a half hour later and the pain backs down even more until it dissipates. What's going on?
Also concerning is that the level of intensity seems to be getting worse with each event. Tonight, the pain was terrible and I could barely breath during the heart racing part. I thought I would collapse in the wating room. 5 minutes later, my pulse had settled, vital were normal (100% O2 saturation!) but my blood pressure was a little high for me 150/58.
So, here I sit in the ER hoping I don;t get another CT scan. People at this sight have been such a wonderful combination of supportive and seriously smart and I've always appreciated the advice. Any thoughts?
Many thanks!
T.
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
Karen xx
Going to the ER is always the right thing to do when PE survivers have chest pain, lung issues, etc. I hope you\'re doing ok.
I wonder if you have some scars in your lungs that might be bothering you. Or maybe you have a lung infection? I know since my PE, while I\'ve not had a lot of lung problems, I seem to be more prone to respiratory stuff that I have a hard time shaking, which includes sharp stabbing pains, weezing, etc. Sorry for speculating and not having much else to offer. Ok, so clearly I\'m not one of the seriously smart folks on this site!
Let us know how your ER visit went.
Keeping a good thought for you!
Rachelle
Best of luck to you
Hugs
Ferr
Let us know how things went at the ER. Are you ok??
Diagnosis: pleurisy. I was put on prednisone for 5 days. I was already aware of the crazy side effects but the memory of the pain mitigated that decision. After being on it 24 hours, it has helped tremendously, although I have a sudden and new urge to chase cars down the street.
So, where did it come from? When we were hunting around for the cause of the PEs last year, we did 2 CT scans, both of which showed a less than 4mm nodule in the lungs. The CT scans were 9 months apart and there was no change so it\'s been ruled benign, which I believe is the protocol for that size. However, both times, the reader and my doctor felt it looked like scar tissue - from a PE? Hard to say. The current theory on the source of the pleurisy is that when I was running, the pleura stuck to the lung and/or became inflamed. My doctor told me that the steroids should help and it\'s possible this won\'t happen again but I\'m still wondering is this now a chronic thing? Will it come back? Who knows? Any insights?
Thanks again for all your concern and help,
T.