Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
hello all
not been on this site long but allready have the feeling that everyone in this support group is in the same boat. varied admitedly but roughly the same sort of symtoms! im coming up to 2 years now and yes i ache and yes im sore and yes i get pains in my back like im having another PE and i get so fatigued all these symptoms add up to a very unhappy existence and all this is after hospital....hospital was fine i knew wot had happened id had a PE and i knew i was alive thankfully the doctors explained PE and wot was going to happen I.E warfarin treatment etc. WHAT NO ONE explains is everything that happens after the treatment when they say ur clear no more clots u can stop your meds congratulations. well for me this is when i believe the start of my problems really began. had to stop smoking (obviously ) as my PE was in my lungs put so much weight on its ridiculous, changed my diet because my liver got damaged also and is giving of fatty tissue as well to much chemicals which cause gout on top of all this the breathing gets very scary now and then and of course the fatigue how can i get fitter when im so god dam tired and sore. im at the stage now where i go in the doctors and im sure they think hes here again because all i get is theres nothing wrong with you all the tests all the consultants one consultant actually asked if i was depressed because it could all be in my head REALLY! I just wish doctors would come onto a site like this and read wot is happening to real life people and understand that there is a common factor with people after PE we all have roughly the same symptoms surely they can look into it as i wouldnt wish my experience on anybody with PE or the doctors while rehabing from PE.. I appolagise for the rant its just i struggle to get threw the days lately and have just been told im not eligible for sick anymore and must return to work :( worked all my life and never been on the sick the only time i have all this as happend lost all faith in my country (UK) and its system !!!!!!
not been on this site long but allready have the feeling that everyone in this support group is in the same boat. varied admitedly but roughly the same sort of symtoms! im coming up to 2 years now and yes i ache and yes im sore and yes i get pains in my back like im having another PE and i get so fatigued all these symptoms add up to a very unhappy existence and all this is after hospital....hospital was fine i knew wot had happened id had a PE and i knew i was alive thankfully the doctors explained PE and wot was going to happen I.E warfarin treatment etc. WHAT NO ONE explains is everything that happens after the treatment when they say ur clear no more clots u can stop your meds congratulations. well for me this is when i believe the start of my problems really began. had to stop smoking (obviously ) as my PE was in my lungs put so much weight on its ridiculous, changed my diet because my liver got damaged also and is giving of fatty tissue as well to much chemicals which cause gout on top of all this the breathing gets very scary now and then and of course the fatigue how can i get fitter when im so god dam tired and sore. im at the stage now where i go in the doctors and im sure they think hes here again because all i get is theres nothing wrong with you all the tests all the consultants one consultant actually asked if i was depressed because it could all be in my head REALLY! I just wish doctors would come onto a site like this and read wot is happening to real life people and understand that there is a common factor with people after PE we all have roughly the same symptoms surely they can look into it as i wouldnt wish my experience on anybody with PE or the doctors while rehabing from PE.. I appolagise for the rant its just i struggle to get threw the days lately and have just been told im not eligible for sick anymore and must return to work :( worked all my life and never been on the sick the only time i have all this as happend lost all faith in my country (UK) and its system !!!!!!
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
You said:
***i am very positive about wot i need to do mentally its the fact i cant do it physically i force my self to try to do more but then like jmac67 says then im very sore for days and pay the price other option do as little as i can but then its the same i ache just as much from not moving put weight on and i am back to square one.***
I'm in the same dilemma. Damned if I do, damned if I don't.
Yes, a happy medium is what I need----- and that's very hard sometimes.
So many people here lament how closed minded their doctors are about what they experience physically after a PE, so it surprises me how closed minded we are to the idea that there may be more to our issues than just some physical manifestations. I'm not saying it's all in our heads. That's a very simplistic view of a complicated issue. I just have a different opinion on recovery and what it means is all.
"I'm a big supporter of talk therapy for people". For any reason.
Going to a therapist can help with a myriad of 'conditions'.
But never ignore the fact that some of a person's discomfort might be rooted in something quantifiable and needs to be addressed with something more than talk therapy.
We're advised here by some to 'relax and get on with living'. Good advice unless there's a medical reason for the pain a person is having and which needs to be taken care of.
rmb---- I don't find anything wrong with your assessments as far as they go and you certainly have the right to express your opinion.
Respectively----- I just don't happen to agree with all of them (which probably won't give you a nano-seconds worth of concern! LOL)
as for depression well thats another route of course i cant see anybody facing up to PE and not feeling emotionally or phsycologically changed i just believe my symptoms are physical :) and how have i got into a discussion with two very literate folk and i cant spell for england lol :)
I personally think this was a really good discussion because it really brought out a good dialogue, I think.