Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

ce1502
As some of you know from my journal, I was re-tested for lupus anticoagulant to hopefully see if it's negative this time. The dr advised that no matter what she wants me on eliquis for at least year, forever if the test is positive. She said she would call me in two weeks or so with the results. I asked her about noacs for that disorder, and she said that now they are pretty much prescribing them for everyone except those with cancer.
I attended a memorial service for an uncle I wasn't close with on my late father's side of the family yesterday. I saw a lot of people who I never see for many years at a time because of distance, etc. At any rate, I was told some discouraging news. Late grandfather, an uncle, cousin, all had clots.
I've already not been dealing with this too well, but now I feel even more scared and upset. Had I known, then I could have made better decisions for my prior medical treatments that led up to my pe. (Birth control pills, hysterectomy, etc.) Due to my ignorance, I wound up with a life altering situation that has made me fearful and miserable. I really don't know how to turn it around.
I'm very bummed out and would like to hear from anyone with perspective/support about any or all of this. I'm having trouble keeping up my "fake courage" that I show at work, out, etc... .This is the only place I can really "let loose".
I attended a memorial service for an uncle I wasn't close with on my late father's side of the family yesterday. I saw a lot of people who I never see for many years at a time because of distance, etc. At any rate, I was told some discouraging news. Late grandfather, an uncle, cousin, all had clots.
I've already not been dealing with this too well, but now I feel even more scared and upset. Had I known, then I could have made better decisions for my prior medical treatments that led up to my pe. (Birth control pills, hysterectomy, etc.) Due to my ignorance, I wound up with a life altering situation that has made me fearful and miserable. I really don't know how to turn it around.
I'm very bummed out and would like to hear from anyone with perspective/support about any or all of this. I'm having trouble keeping up my "fake courage" that I show at work, out, etc... .This is the only place I can really "let loose".
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
You cannot change the past. Accept what happened to you. Make peace with what happened to you. Then put it to rest after you get your test results, whatever the results may be. You will never be able to.move on or ahead if you keep looking back.
Honestly, to some extent, I might find it comforting to have relatives with clotting issues. I'm a complete loner in my family in terms of clotting history and my super-new-age-healthy parents are convinced that I "caused" my clotting by eating the wrong foods or taking the wrong medicine.
Oddly enough, my husband has an extremely strong family clotting history (father, aunt, cousins all have Factor V; grandfather died from clots) and he's never clotted. He's also never done anything to avoid clotting, even through he's had knee and foot surgery and flown internationally many times. He's also never been tested for Factor V and doesn't really want to be.
So, I guess what I'm trying to say is that a family clotting history is no guarantee that you will or won't clot... so getting hung up on that is probably just a way to torture yourself because you're convincing yourself that if you had just known, you would have been able to prevent everything that has happened to you. And, honestly, that just isn't true. It's impossible to know what steps you could have taken to avoid where you are now ... so don't torture yourself thinking that you (or your "ignorance") caused this somehow.
Every little bit of knowledge that you gain is power. It is power to retake control of this situation and to move forward knowing what you need to do to stay healthy in the future. Nothing that you learned about your relatives changes anything that has happened except that it gives you some guidance into possible causes and how you can stay healthy in the future.These are GOOD things.
You are going to have to figure out how to start looking toward the future instead of wallowing in the past. I mean, I relived the weekend I was admitted to the hospital a thousand times in my head, but at some point I moved past that. I think you do have to work through it to get past it, but it is possible to just get "stuck" there.
Think about what you want the future to be like. Make a list of things that you think the clots took from you ... and then figure out how you're going to take it back. Make sure that YOU are the one running the show, not the clots. As a minor step, maybe start a gratitude journal and write down good things that happen everyday or things that you're glad about. Only *good* stuff in there and its something you can come back to when you need to.
There's no reason that this needs to alter your life, other than to make you more aware in the future. You don't need to be fearful and miserable long term. I've dealt with three clotting incidents, including some pretty severe anxiety after my PEs. But, I would say I'm recovered and my life is pretty great. I travel, I exercise, I hike, and do everything I did before the clots. I'm a lifer on anticoagulants, but I wouldn't say that affects me much, other than carrying a pretty buff first-aid kit when I'm off the beaten path.
You WILL be fine. Take baby steps ... anything you need to do to feel better and calm and safe are things you need to do right now and frequently. But, don't turn your back on your fear and misery completely. Give yourself 10 minutes to wallow when you need to, but then move on. There's no reason to let microscopic blood clots run your life from now on.