Yes I have Fibro/Narc/Sleep Apnea. All so confusing. Today even though I took my medication (Aderal)to stay awake I was tired all day. Now it is 11 pm and I am wide awake. :( What is so frustrating is not knowing where one condition begins and the other ends.

I was DX with Fibro when I was 15 years old, since I was DX with Narco and taking the correct meds, the SX of Fibro are gone, I dont know that I believe in the DX of Fibro. What are your SX?

Yes. I was just diagnosed with fibro. and have had narco. for two years plus. What are you doing for treatment? I am really feeling bad abou things and am in pain. What have you done to help?

I was diagnosed with ME (CFS) 15 years ago which includes fybro. I have been wondering if there was any relation to Narc - although I haven't had a firm diagnosis of Narc yet, still doing tests. Really interesting to hear others' experiences with these things overlapping / co-existing

Ok, so dont get mad at me.

I have had N for at least 10 years that I can remember. About 6 years ago this horrible pain in my upper spine started and has not gone away...like an injury, but I didnt injur myself. I have dont tons of stuff to make this pain stop and nothing helps, meds, massage, hellerwork, rolfing, resting...nothing. I have had Drs tell me it may be fibro, but here is my theroy (my sleep Dr tells me this is reasonable, though not provable). I think that not resting, sleeping, getting proper rest, whatever N is for you is so hard on your body. Your nerves dont rest, your mussles and tendons and things cant rest and recover from the day. I think that over time not resting makes our bodys mad and they revolt against us and cause pain. It just reacts differently in different people, just like N does.

I think that after years and years of not sleeping and not listing to my body saying "slow down and get some help so I can sleep" that is caused this pain in my spine to give me another reson to stop, a sign that something was wrong and needed to be addressed.

not sleeping well is at the core of fibromyalgia as is narcolepsy. with narcolepsy, your body thinks it is very sleep deprived no matter how much sleep you get. I can sleep all i want but my sleep is not restorative. once i stopped sleeping 16-18 hours a day, is when the pain really started.

one of the meds i was taking (i'm working on starting it again), helped both conditions. it was ambien, a sleeping pill. it made my sleep more restorative so i wasn't quite as tired. my body had time to repair itself so i wasnt' in as much pain either. i still needed other meds but it did help out alot.

studies have been done where people were purposely sleep deprived. each time they went to sleep, they were woken right before they reached the deep sleep stage. after a few days of this, these people began presenting with the symptoms of fibromyalgia.

Does anyone else have the problem with head to toe neuropathy feeling? Burning and needles all over. I have been dx with fibro for ovef 20 yrs but dont hear this problem discussed and drs just dont care to find out abput it.

I just noticed there have been no posts on here for 9 years. I thoight i was joining an active fibro support group. How do i find a group?

I see you already found it, Megan, but just in case anyone else needs it, this is the link to the DS fibro group.

https://www.dailystrength.org/group/fibromyalgia

Interestingly there is always studies ongoing looking into the hereditary aspect of both narcolepsy and fibromyalgia and if they are connected in some way. This is of particular interest to me as I have been diagnosed with Narcolepsy and my younger sister has fibromyalgia so it will be very interesting if they discover a link between the two disorders.

I haven't pursued it but every other day think I might have fibromyalgia. The post in this thread about our bodies not ever being restored from sleep says exactly what I feel about it. At least reading posts like these make me know others feel the same way.