Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I have started a 'natural' support treatment for my MG about 2 months ago, and would like to hear people's experiences with supplements etc. that they tried or heard of.
(this is not intended to treat your condition - please seek advise from your own doctor. thanks.)
I am currently on 90mg / 4times a day & these supplements (some suggested by my Naturopath and some I researched myself):
Lecithin granules
Phosphatidyl Choline
Creatine
Fish Oil
Multivitamin
Calcium/ Magnesium
Vit. D
Spirulina/ Chlorella
Heel Homeopathic Remedies : Arsuneel, Gelsemium Homaccord,
Aesculus Compositum, Galium
+ I increase vit. K, E, protein in my diet + try to eat healthy.
+ I'm doing a parasite cleanse - I'm half way.
I have also researched these but I haven't started them: Huperzine A, DHEA, Freeze-dried thymus capsules (if you had a thymectomy), Coenzyme Q10, NADH
I know conventional medicine/ doctors don't support this type of treatment - but in my research so far there's evidence that proper mineral/ vitamin support alongside a stress- free (lol) lifestyle can boost your body's natural ability to repair itself.
I have noticed a moderate improvement in the last few weeks alone. I have added a mild workout consistently every 2-3 days plus I try to reduce stress w/ rest, nap, breathing exercises/ meditation + I get reflexology massages 1/wk.
Let me know if you have tried or heard of a certain support treatment and if anything has worked for you. Hey, the doctor's are not telling us everything - mine isn't - with the internet now, it's easy to do our own research and help ourselves... It's all in our hands - let's get better together. ;D
(this is not intended to treat your condition - please seek advise from your own doctor. thanks.)
I am currently on 90mg / 4times a day & these supplements (some suggested by my Naturopath and some I researched myself):
Lecithin granules
Phosphatidyl Choline
Creatine
Fish Oil
Multivitamin
Calcium/ Magnesium
Vit. D
Spirulina/ Chlorella
Heel Homeopathic Remedies : Arsuneel, Gelsemium Homaccord,
Aesculus Compositum, Galium
+ I increase vit. K, E, protein in my diet + try to eat healthy.
+ I'm doing a parasite cleanse - I'm half way.
I have also researched these but I haven't started them: Huperzine A, DHEA, Freeze-dried thymus capsules (if you had a thymectomy), Coenzyme Q10, NADH
I know conventional medicine/ doctors don't support this type of treatment - but in my research so far there's evidence that proper mineral/ vitamin support alongside a stress- free (lol) lifestyle can boost your body's natural ability to repair itself.
I have noticed a moderate improvement in the last few weeks alone. I have added a mild workout consistently every 2-3 days plus I try to reduce stress w/ rest, nap, breathing exercises/ meditation + I get reflexology massages 1/wk.
Let me know if you have tried or heard of a certain support treatment and if anything has worked for you. Hey, the doctor's are not telling us everything - mine isn't - with the internet now, it's easy to do our own research and help ourselves... It's all in our hands - let's get better together. ;D
http://www.dailystrength.org/c/Myasthenia_Gravis/forum/12878810-lecithin-granules/page-2
I really would like to hear what you are referring to with lecithin acting as mestinon.
There re 3 recipes for pizza crust each using a different flour. This one uses brown rice flour and makes a 6 inch individual pizza.
1 egg
2 teaspoons canola oil
2 Tablespoons applesauce
1/16 teaspoon salt
3 Tablespoons brown rice flour
1/2 teaspoon baking powder
Baked on microwave-safe round plate
1.In small bowl por cup,briefly beat egg until nearly uniform in color
2.Add remaining ingredients and mix well to combine. The dough will look like a creamy paste.
3.Spray microwave safe plate with non-stick cooking spray.
4. Spread batter into a 6 inch circle
5.Microwave on high for 1 minute and 30 seconds
6.Remove from plate and cool
7.Place crust on metl tray or foil, top with your favorite toppings.
8.Finish baking in toaster oven or conventionloven at 400F until cheese is melted and crust is crisp. Baking time will be approximately 8-10 minutes. Although pizza crusta have good taste and form, their texture is not uite as chewy as I prefer in a ppizza crust. If you like a chewy crust and shold you have xanthan gum in your pantry, I suggest you add 1/4 teaspoon of xanthan gum to the ecipe at the same time the flour is added.
Also Godfather's pizza has glutenfree frozen pizza made in a dedicated facility. They will bake it for you f you want to eat it there or else take it home and bake it at home. I do not know if it has yeast in the crust. not all Godfather's pizza places carry it.