I'm trying to find the best multi-vitamin to take that won't be so repulsive (as far as large pills). I'd rather have gummy vitamins. I was planning on trying a few supplements, but then I read taking supplements one by one actually makes it even harder for the body to absorb it. So, I was planning on taking a multivitamin and then taking supplements of Co Q10 and then Milk Thistle (for the liver). I read Co Q10 is good for muscle problems.

I can't seem to find a multivitamin that is a gummy that has all the vitamins and stuff needed really. I read the One A Day VitaCrave isn't the best, because it actually leaves out a lot of essential vitamins and minerals to taste better. I noticed Vitamin K and E are getting left out. Know any good vitamins with those and also Magnesium that comes all in one?

Magnesium is on the no-no lists for mg patients...which is why a multivitamin, which usually contains magnesium, is not prescribed.
I take vitamins, separately, that supposedly support the immune system: D, E, B complex, manganese (NOT magnesium!), lecithin.

More than 400IU of Vitamin E is said to kill people over a long period. I would advise not even taking it. Vitamin K is not a common vitamin to be deficient. I have been looking these supplements over and I believe you all may be over doing it. Magnesium is no my no no list also. I don't really know about Cinnamon, I like it and I will eat it, despite what I have heard about it. Creatine may be ok, but I don't take it right now. We don't want alot of acetycholine unless you don't have the antibodies, I'd say. I am still trying to figure this out a bit, but I believe the more acetycholine, the more antibodies for me, which is why I am going to supplement with Huperzine A soon in addt' to Mestinon both which inhibit the acetycholine. THC in cannibus may be the best inhibitor available. I quit smoking it temporarily to make sure it doesn't cause me anxiety. These should all be facts, and you should all check into this stuff, don't get desperate. Here is my new plan:

Huperzine A
B-Complex w/ Choline and Vitamin C(2X to 3X a day)
Mestinon 3 to 4X a day
Mestinon Timespan 2X (1 day/1 for sleep)
Balance diet every meal of 30%Fat, 40%carb and 30% protein
Exercise when I can

Best wishes for peace to all,

TJ

Oh, and sometimes to make sure I get enough fat when I eat, I will eat Flax oil or Fish oil the same. I would rather eat the food though,

There is alot of metal and protein also in Spirulina, so be wary. Only reason I stopped taking it was:

"A double-blind, placebo-controlled study in 2006 found that spirulina supplementation decreased the amount of creatine kinase ( an indicator of muscular breakdown) in individuals after exercise. Furthermore, the experimental group's time to exhaustion during all out treadmill exercise increased by 52 seconds."
http://en.wikipedia.org/wiki/Spirulina_(dietary_supplement)


Since I take protein powder, I see no reason to take it anymore.

Excuse me, I said: "I am still trying to figure this out a bit, but I believe the more acetycholine, the more antibodies for me, which is why I am going to supplement with Huperzine A soon in addt' to Mestinon both which inhibit the acetycholine. THC in cannibus may be the best inhibitor available"

I meant acetycholineterase, not acetycholine. Although I am still waiting for verification on the THC, because what I saw was referring to Alzheimers, and I am also wondering why Mestinon would not then be a treatment for Alzheimers..and thus THC would be a treatment for MG. I have not started smoking pot yet, and if I find that it will help, I will wait until next year to be sure of my anxiety. It is interesting to me what is what out there in the way of drugs, and herbs especially when they may accomplish the same goals, but not be a prescribe for the other condition. Hmmm..

I'm almost ready after two days now for taking out this Huperzine A from my daily regiment. I don't feel the benefit. Pehaps a slight energy boost, but not strength, and that what was I was looking for. I may just take a very small amount instead, or none. I am not feeling right and getting scared...

Hi Everyone,
So exciting that my post has reached over 50 comments ;)

Thanks for everyone pitching in their input and research.
In response to the last few comments
Gummy bears? Please don't take cheap inexpensive, filler vitamins - I don't even give these types of vitamins to my kids. Unless you're looking at a quality purchased brand like at the moment we have some from Naturesplus.com (these are kids vitamins though and the dose is meant for a kid so as an adult you would need to take more to get a proper vitamin intake)
- that being said - I am repeating this - try to look for vitamins and minerals in REAL food if you can. Or if you can't swallow well - try Greens Plus brand.

Vit K - yes this is true but it's for large quantities - see my original post has Vit K listed that 'I increased Vit K, E, and protein in my diet) I did not supplement with these.

Spirulina - interesting link cgreens - take at your own risk. Look into the positive benefits as well, the decrease in creatine levels.... (for me I still like the health benefits of the spirulina - as a vegetarian it's my great source of Vit B12.)

Huperzine A - still sounds great but I still don't take it.


I just want to reintroduce the idea our health problems being associated with Candida and/ or food allergies/ sensitivities.
Has anyone looked into that?
I got better because I believe I targeted the yeast build up of Candida and I did that with an anti-candida diet and specific supplements for that. (mentioned above).

I also learned I have an allergy to wheat - not on a skin patch test) but by removing it from my diet for 2 weeks and then eating it. When it was isolated, I had a reaction of an itchy throat and runny nose - I DID NOT have these reactions before when I ate it regularly.
Similar things happened with eggs, barley, dairy, butter....

So my suggestion isn't only for finding pills to pop in. My success story isn't about that at all. It's about learning about your body and what could possibly make it sick. Looking at Candida is a great start - devote yourself for a few months and you could be amazed with the results. That will require removing, sugar (even juice, artificial), all dairy, fermented/ pickled foods, no mushrooms of any kind, no bananas, no peanuts, no wheat, no alcohol (yes this is hard right before the Holidays - you're thinking 'is she crazy?'.

I didn't say this would be easy but it requires total control and focus to get better. If you're sick and tired of being sick and tired you will try it. No one can force you to do anything. But food is added daily to your body - and you're sick with a mysterious condition.
Why not look at the type of food you feed your body with????..... it is VERY possible that's what's making you sick.
The supplements are as the name itself suggests - just supplements.

Please write down if you're ready to commit and try this. (I would like to see the progress of someone else who tried this route to see if this leads to a remission).
Good luck everyone!
Ella.

I see a holistic consultant, he orders blood work every 6 months, I had never heard of some of these tests. I have been on holistic meds and lots of vitamins, since early 2010, I stopped taking everything Sept. 2011, the reason I stopped is bc of new neuro wanted to retest me, I thought that everything, i was taking would interfere with MG testing, the second reason is, I wanted to prove to myself, that they did help.

Forgetting to mention that my MG is mild, especially in the fall, summers are pretty bad with weakness but breathing is okay.
I do agree with foods as well and have tried this, I eat whole foods, no preservatives or any foods that are precooked and sold in a can, jar or freezer.
I am starting to take vitamins again, currently, I am taking vitamin D3 and {potassium, prescribed} I am taking one at a time for a while, I'm introducing all of them little by little. I want to make sure that all that I am taking is helping me and not hurting me.

I have been wondering about my multi, it does have magnesium aspartate in it, I was also taking liquid calcium with magnesium citrate in it.

My has my tune changed since this thread. This is before I had even started treatment for my MG, and the natural approach simply didn't help my MG from progressing. A busted open head can attest to that. I continued to increase my mestinon intake and I could not hold the beast back to combat the symptims. One night I collapsed and said "time to get on cellcept", so I did shortly after and continued to take a lot of mestinon. Shortly after starting the cellcept, I had a mountain dew that included what I believed to be quinine and other substance that hindered me to the point of falling backwards and busting my head open...Two days later, I started IVIG to push back at this disease. It worked! Since then, I started taking an 8 source protein powder with peptides as supplement with my breakfasts any time I am not eating much protein. In addition to that, I take an organic vitamin wihich includes herbs/plants like peppermint leaf. It has stress support/cardio/digestive and even prostate along with vitamins including the main B vitamins.

This thread reminds me of the times MG was in control of me, and times I was really struggling. It is not the case now, and it would seem that Cellcept is the reason. I only wish that I listened to my Neurologist sooner....she had the background on her side. I just didn't want any risk. Hindsight is 20/20, but it is the sour times that make the good times that much better...

TJ

I also want to add that my mestinon intake has dropped GREATLY since this thread, and my diet consists of mostly organic foods and drinks. I drink water as my number one beverage consumed, and it must be bottled from the source. I do not drink Soda Pop, but an occasional Hansens natural Root Beer soda has gone down nicely, but even that exacerbates me a bit. I know my limits. Mostly I eat as much natural food as possible. Of course I get in my other foods like pizzas or restaurant food when I get a chance too. I like to go out..but even then I am cautious.

Being aware of our triggers is very important, and can make a huge difference...in my opinion

I also avoid Fluoride as much as possible, which is in many toothpaste and much waters(including tapped and bottled) out there.

Hey TJ, I am sorry that at this time MG had control of you and this thread reminds you of that time, Falling back and cracking your head is pretty severe, at this level of severeness, all the natural foods and vitamins aren't going to kick MG back and conventional meds are necessary.

Funny you should mention fluoride, one month ago I stopped using fluoride mouth wash, I got tired of crashing after a few hours of light house work. When I was bodybuilding, I did process of elimination, I m doing that again to see if there is a difference in how I feel. Foods in bodybuilding are 90% and very scientific in the battle of competing, The diet of a bodybuilder is limited and clean, even going out to dinner would effect a bodybuilder, while I was competing, I didn't go out to dinner, I do now but with balance. Like bodybuilding being sensitive to everything that one eats, I am starting to believe that MG is that much more sensitive and everything must be considered, especially conventional meds, though, my MG is mild, on occasion I still take mestinon. Starting a new thread might have been a better Idea, I'm sorry TJ, for bringing this up.

No apology is necessary. I was in my denial stage then and desperation was sinking in. It is not a bad thing to remind me. Good luck to you and all of us. This is a thread that is a reminder to not lose hope, and believe that we will get better...sometimes it is good to be refreshed about where one has come from compared to where they are now.

TJ

Hmmmmmmmmmm Interesting. I too, do not like to take chemical meds. I was scred to start mestinon as I have had so many allergic reactions to various medications. I did it slowly. Told people my body has to get use to this poison. It worked and so does the mestinon. But I still would like a back up just in case the mestinon stopped working or the doctor figured I needed more than mestinon.
many years ago, I took cortisone for my Addison't Disease. I had severe allergic reactions. I now take Licorice Root which is a natural cortisone instead of cortisone from pharmaceuticals.
I know lethicin granules should act like the mestinon but how much to take? And can a person with MG overdose on lethicin? I durely do not want to do that.
I have checked out the Homeopathy formulas but have not tried any because I am a cautious person. If I need to because Mestinon needs more help or quit working, then I would talk it over with my doctor before deciding. The other meds for MG hav side effects that scare me. I have other medical concerns besides MG.

Bambee, I don't recommend holistic approach without someone knowing what they are doing etc., Doctor or holistic consultant that knows what MG is, also. If your MG is moderate to severe, I would really be careful.

bambee,
you said:
"I know lethicin granules should act like the mestinon but how much to take?"
I didn't...How do you know this? Where did you hear this?

And can a person with MG overdose on lethicin? Overdose? Not specifically, but hurt themselves? Yes they can, and I have posted the effects of doing so on another thread here.

I agree that you should be careful, absolutely....

TJ