Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

My neuro gave my prescription that said take as needed with the warnings of the upper limit to take. Doctors who say take only X per day on an exact schedule don't really understand how mestinon works, how our disease works, and also probably don't trust us to not overdose.
The usual medical statement says: "Doses of 30 to 120mg are given at intervals throughout the day when maximum strength is needed (for example, on rising and before mealtimes). The usual duration of action of a dose is 3 to 4 hours in the daytime but a longer effect (6 hours) is often obtained with a dose taken on retiring for bed. The total daily dose is usually in the range of 5 - 20 tablets but doses higher than these may be needed by some patients. "
Doctors and patients have some obligation to include common sense, and everything written about the treatment of MG with mestinon emphasizes its "as needed" use. My only hospitalization for MG was early on when I actually believed I should take 3 per day --spaced at 8 hours from a neuro who didn't treat MG and read it in some guideline somewhere and passed it on to me. In the hospital, I got a real MG expert who immediately moved me to 90 every three hours and then told me to go the "as needed" route. I took more in the morning when I wanted to be active and cut back evenings and overnight.
Good Luck
Good Luck