Sorry it is so hard right now. Do you use cane or walker to steady yourself when walking? If in store always use the cart to lean on.have you explained to friends the problems or asked them to resd on line about mg? Also google ICE for your phone ,in usa emergency workers all should check your cell phone for emergency numbers to call like your father,friend dr,etc. If something happens to you. I wish you well.

No I don't use anything because I don't need it.I don't have a problem with my walking expect my fear because of all the things that I've been through.

Yes! The brain is so powerful! I go out with my mom, but don't like to go anywhere alone right now. My legs are still so weak. I'd never cross a street without being in a crosswalk out of fear of someone not seeing me fall. I fell down the stairs a few weeks ago and it makes me extremely nervous now. Today, I fell backwards in my kitchen. It's hard once you have had several falling incidences, your brain psyches you out that it's going to happen at any moment and it's a scary thought.

Just a thought, but you might want to use a cane for walking. Nobody likes having to use one, but if the alternative is staying in the house, I would choose the cane. In addition to helping you steady yourself while walking, it is a visual cue to others that you have some issues. People are more apt to help you with doors, and to give you some more personal space while walking.

Your fear of walking is normal.

This disease is a lot for anyone to handle, especially such a young person as yourself.

With proper treatment, it will get better, and eventually you will trust your body again.

You have been through a lot. Take your time, the friends that matter will still be there when you are ready for them.

Good Luck, and keep us posted :) Chris.

Great to hear you are doing better and can walk distances OK.

When I started getting better and could walk more, I did my walking at the clinic where i was treated. It happened that my wife was coming in 3 times a week for cancer treatment (she made it OK), and so I came along and walked around the corridors. It felt very safe as I was always near medical help.

My next walking was at the big shopping center (it was winter time in MN, so that was a good place to go). There were bench seats along the way. I pushed a shopping cart at first, but then just walked with a basket. Only down side was I kept finding things I could spend money on.
'
Eventually when you keep walking enough and you don't have problems, the fear goes away. I always carried my cell phone so I could call someone or 911 if I did have problems. Most of the time, all I had to do was sit for a while and things were OK.

Some of the fear can be faced rationally, by having a plan that you have made as to what you will do if you should have problems. Also tell your friends, although you think you will be OK, there is a possibility that you might have to rest once in a while. Most friends can understand that and adjust.

Good Luck. I remember how great it felt to be able to walk as far as I wanted to without getting out of breath as I got better. Life is too short for us to not occasionally try our limits, MG or not.

Have you thought of using walking sticks? I've used mine three times this week alone. People think I am power walking but they give me much needed stability. I haven't had a bad ankle collapse since starting Mestinon but they certainly help when my breathing gets tough. I have lightweight folding aluminum ones that fit in a backpack or carry on bag. I don't travel without them and keep in car for use at work too.

I don't have stability problems or anything else with walking. I don't go out with the fear that I will go through the same stuff that I did before I was diagnosed. Walking before mestinon and pred was a traumatising experience for 3 months. Anyway I plan to start next monday walking on my own.

* I go out with the fear that I will go through the same stuff that I did before I was diagnosed.

Good luck ! My mom 91 is unsteady on bumpy surfaces even rug to hardfloor now and she walks next to walls /furniture just in case. Im steady walking but use cane etc to save energy. Whatever works for you with or without god luck!

my neuro said to adjust my mestinon if I need it . so I take one when I get tired and then the rest of my dose when it is time and that helps I also take a cain with me just incase.
Chuck

Has anyone ever walked at summer for hours with the sun above their heads? I wonder if people like me with mild tension symptoms feel ok wih summer walks.

Heat/sun is usually bad for mgers. My muscles just melt in the sun even sitting outside on hot day feels awful.i even take lukewarm showers before bed. Take care

When my legs feel weak, I carry my handy seat. I looks like a cane, but really it is a 3 legged stool. It has saved my life many times. Sometimes I take into stores, but never have to use it, and other times, I use it a lot.

I understand that you don't actually have trouble walking but just the fear. In the past I have fractured several bones from falling, and although I am stable now, the fear is still there. I use a cane [a variety of fashionable ones!], a walker, or a service dog even when I don't always need it because of the fear, and it really helps. Eventually the fear decreases but I still use the walking aids if I am in unfamiliar places or in crowds.

But it is also a matter of not letting MG define us. We need to be pushed out of our comfort zone at times or our world just gets smaller and smaller. Life is risks, and we need to be part of it.

God bless and hope you do well.