Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
A little update. I have been taking the Mestinon for close to two months now and have noticed a big improvement. I have my follow up with neuro in Nov. so I don't have a diagnosis yet of MG.
I saw my urologist last week. He has followed me for a long time due to a neurogenic bladder. When I updated him on starting Mestinon and the possibility of MG, he nodded. Then he said the neuro should keep looking. He said he thinks I may have more than one condition. He said the bladder is clearly neurologic, and that MG does not usually affect the bladder. He said it usually affects voluntary muscles.
Do any of you have a neurogenic bladder or bladder related problems related to your MG?
I saw my urologist last week. He has followed me for a long time due to a neurogenic bladder. When I updated him on starting Mestinon and the possibility of MG, he nodded. Then he said the neuro should keep looking. He said he thinks I may have more than one condition. He said the bladder is clearly neurologic, and that MG does not usually affect the bladder. He said it usually affects voluntary muscles.
Do any of you have a neurogenic bladder or bladder related problems related to your MG?
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
Although bladder muscle is involuntary, there are voluntary muscles involved in urination.
Mestinon is actually used as a treatment for people without MG who have an "inactive" bladder or for constipation as it increases the messages to the voluntary muscles -- which of course are present so we can control when to urinate or defecate.
good luck
When tired or having symptoms bladder embarrassingly weak.
Definitely.
Mg impacts voluntary and involuntary muscles.
I know that because it impacts breathing.
Mg can impact anything
Most of us here have more then one condition. It can take a long time to nail down all that contributes to our vartied problems. I have an autonomic componetnt and both small and large fiber neuropathy as well as Hashimoto's and Raynauds. I may have a condition called autonomic autoimmune ganglionopathy. We are not sure yet....but it also effects acetylcholine only at the ganglion.
I did tests abnormal on SFEMG so for sure I have a neurojunction disorder.
Also the bladder has both voluntary and involuntary muscle control.
If it were all involuntary there would not be something called potty training we all go through as children. For the urine to exit the bladder, both the autonomically controlled internal sphincter and the voluntarily controlled external sphincter must open..
Some of us have wondered about MG's effect on bladder control.
Most textbooks negate it saying the bladder is under involuntary control but in fact it is under both. I have talked in depth to a uro=gynecologist I respect and she thinks it can too. Breathing is another area with both types of control. We automatically breathe but even that can get screwed up with apnea and of course we can control our breathing to some extent by taking a big breath or a small one.
Will hope you keep finding answers.....Great on the mstinon working so well!
Michele
Glad you are feeling better and good luck
Chuck