Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
What were your first MS symptoms like?
jshipley
I'm going to have an MRI this month to test for MS, but I'm just wondering how everyone else first found out something was wrong. I'm a 22 year old female. About 2 years ago, my legs started getting fidgety when I got tired. I thought this was just restless leg syndrome & I also had a newborn...I just figured I was really tired. Then about a year ago, my arms started doing the same thing. They just feel like they have to be moving constantly when I'm tired. Recently, my left pointer finger & pinky have begun to twitch randomly. Also, my left hand has gone tingly (not necessarily numb) for hours at a time. I also have back pain in the middle/lower part of my back. It doesn't necessarily hurt, it just feels tight and aches. I thought this was scoliosis. In addition to all this, I feel tired ALL OF THE TIME. I went to the doctor to rule out any vitamin deficiency because I truly thought I might have an iron deficiency, and my blood work came back normal, so now I'm being sent for an MRI to test for MS. That's my story. Anyway, like I said, I'm just wondering how any of you first clued in to the fact that something wasn't quite right.
Posts You May Be Interested In
-
Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
-
I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...

Most important thing I would say is not overdoing, not overtaxing, staying out of the heat of the sun, and eating a healthy diet. I've switched up my eating habits a great deal since most of what is wrong with us has to do with what we eat. Or, at least, it doesn't help us defend ourselves.
I had also developed a bladder frequency and some pretty severe fatigue. Initial symptoms can sometimes just go away and remain dormant too. Every case is so different.
Hope you don't have MS but something that is more readily remedied. :) Stress is a huge issue with MS as well as with any other thing going on with our bodies. Try to keep your stress to a minimum if possible.
Best of luck to you.
I was seeing a doctor for each one of my symptoms I thought I was taking care of things never did I think I would have MS. Honestly I didn't even know anybody that had MS.
Even when I was losing my vision I went to my eye doctor and she said that because I get severe migraines that this was probably just an ocular migraine and things would return to normal in a few days. Then when my vision was completely gone a few days later I saw the macular specialist and he was the one to first mention MS actually there was 3 choices I had thyroid cancer so that could have spread to my brain, I have an existing benign tumor in my brain and that could have gotten bigger or I have MS. So I guess I got the best option out of the 3. I have to say I was relieved that I did not have cancer again.
I guess that's a weird way of looking at it but that is my story.
Good Luck it is a scary time but we are all here to listen, offer advice and we can each relate to you in our own way.
Up to this point, no one put all my symptoms together to come up with a diagnosis. Each symptom was treated separately. And I had no idea they were related. I was 57 when I was finally dxd, but symptoms had begun six years prior.
Saw a new neurologist, he saw spinal lesions that the original radiologist and neurologist missed, and this was without contrast. Three months after I saw the new neuro, I was on Betaseron.
My first real MS identifiable symptom was optic neuritis when I was 29. It went away and I had no symptoms for 16 years.
I am interested to hear if your restless symptoms do yield a DX.
My daughter has the same thing and there are some schools of thought that believe that MS is genetically linked.
Long story short, it took 5 years to get a correct diagnosis and be told it was MS. From odd blood work, to red faced, to stumbly and bumbly. it came and it went and that made it look like I was making it happen or pushing it when it did happen.
Finally an MS center said You have MS no wonder all this stuff happens.