Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I had my first real flare up last month and that shook me up, it just made it more real, more so than I would have liked...
broke down when i saw my sis....broke down a little today, it comes and goes.
the grieving continues in small stages. no one humongous breakdown...but many a day a little tougher than others.
luv
heather
I think I expected it. In fact the possibility was real enough for me to continue private insurance after retirement. Honestly, I think it is because it has not really hit me. I think when (if?) it gets to the point when I have to tell people or leave them wondering, it will hit me... My mom suspects something is wrong with me, but I cannot tell her.
I only had 1 full time & 1 part time semester left. I had 6 resume's to target different available jobs.
My diagnosis was sudden. I stumbled into the hospital, not knowing what was wrong, but since I am healthy, I thought I would just need a shot of penicillen to correct it and get me back into "job hunting" capability.
I was uninsured, I had lost my job & I thought it was money I had to spend to be successful in an a job interview.
Within three hours they had run a cat scan, MRI and told me I had MS & I had had it for a long time based on my MRI. Then they admitted me to neurological intensive care for the night & started me on IV steroids.
I really, really thought that God had given me too much to handle. I had rolled with the punches on the job lay off & I had been making the best of it. Now ADD MS along with being uninsured for the 1st time in my life it was just too much for me to handle. I began to cry & cried for 4 days solid, helped I am sure by the steroids which were a new experience to me.
After the diagnosis, I focused on completing the degree. I knew to be able to live with myself I was gonna need to complete the last goal I made before MS.
The doc advised me against going to school, but I went anyway. I made it through 1 semester, the 2nd part time semester I was unable to go to the university. The profs allowed me to complete the degree over the internet. Despite the school did not have any internet classes. the profs just emailed the lecture notes & test and let me complete the degree. Talk about nice!!!
Some time around this time, when I was unable to go to the university. The ANGER started. Lot's of anger. It's been about 4 years & the anger is les consistent. But still I get angry when I think of that time & all I lost....it does seem that god's against me.
I could have got MS when I was employeed and covered by a LTD policy. Which I had had in every job for the last 15 years. But GOD waited until I had been laid off. Yes I can still get angry thinking about it!
I think there has been some degree of denial during my periods of remission.
Two years later, I still had not gotten better and doctor guessed MS. Did electrical conduction tests and finally did a LP (spinal tap). I confirmed the diagnosis with an MS specilist.
I hedn't needed the brain surgery but if the diagnosis had come sooner there was nothing they could do (just approved Betaseron).
At this point I am happy with Copaxone and taking LDN and short of a hoped for cure, I am not going to try any other drugs.
In truth I was just so relieved that it was only MS since the other explanation for my symptoms was a tumour on the spine.
Now remember my first episode was in 1960 & I got dx in 1992. Told my mom that I had proof it was in my head.