Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Haven't posted on here in years, hi again!
Anyways, I was diagnosed at 11/12 with MS, and currently am in college. For the most part, I keep my MS hidden and blame my hands shaking and monoclonic jerks on caffeine, even though I sleep around 10 hours a day, mostly due to my MS. I take a lot of gabapentin, and kind of hide when I'm taking it because I don't want people to ask questions.
I've found that physical activity really helps my MS and joined the Rugby team a year ago. Not only do I have MS, but I've had 5 concussions. I honestly believe concussions have done more damage to my cognition and moods than MS has, which is scary.
BUT it is motivating me to stay active. I know I should probably have never started playing, but have really begun to like the sport.
I am mentally trying to be okay with quitting for my own safety, if I didn't even have MS, I still would need to quit. It sucks. Also, my neurologist either doesn't care I play a contact sport, or doesn't believe me so he's never had anything to say about it.
I came here looking for words of affirmation, and just to tell people what I plan to do before I have to tell my team that I'm quitting for good, not looking forward to it because they're not very kind to people who quit.
Anyways, I was diagnosed at 11/12 with MS, and currently am in college. For the most part, I keep my MS hidden and blame my hands shaking and monoclonic jerks on caffeine, even though I sleep around 10 hours a day, mostly due to my MS. I take a lot of gabapentin, and kind of hide when I'm taking it because I don't want people to ask questions.
I've found that physical activity really helps my MS and joined the Rugby team a year ago. Not only do I have MS, but I've had 5 concussions. I honestly believe concussions have done more damage to my cognition and moods than MS has, which is scary.
BUT it is motivating me to stay active. I know I should probably have never started playing, but have really begun to like the sport.
I am mentally trying to be okay with quitting for my own safety, if I didn't even have MS, I still would need to quit. It sucks. Also, my neurologist either doesn't care I play a contact sport, or doesn't believe me so he's never had anything to say about it.
I came here looking for words of affirmation, and just to tell people what I plan to do before I have to tell my team that I'm quitting for good, not looking forward to it because they're not very kind to people who quit.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Here's what Daniel Amen mentions about concussions on youtube:
https://www.youtube.com/watch?v=StIbeQmOlVQ
I hope you find a sport you can enjoy as much are more than you enjoy rugby.
@lorrie I watched the whole video and am considering sharing it with friends who either still play a contact sport, or have quit, thanks for the video!
I hope i find another sport too, I used to swim, so I'm considering taking that back up (plus it's a good choice for MS) and a professor got me into yoga this semester. I think I'm going to make the right choice and quit, but I keep having second thoughts, which I really need to just get over, as hard as it may be.
Gadolinium has a pretty short half-life so as long as people aren't exposed to gadolinium a lot, it really shouldn't be a problem. I also use a heavy metal detox vitamin after MRIs just cuz im a paranoid and thorough person lol!
But obviously, I'm aware that there are exceptions and people may be experiencing negative side effects.
For example, I got really sick from an airborne agent used in my old high school that they sprayed nightly on surfaces for MRSA, most people were perfectly fine.