Hello, I'm Cat.
I feel strongly that I have MS and I would like to describe my experience to see if this seems familiar to those of you who have been diagnosed. I apologize for the length of this post...
In April, I began to have difficulty swallowing. To this day, I still cannot swallow properly. It is as if my swallowing reflexes will not go off. When I push food toward my throat and it begins to slide down, I cannot swallow it and nearly choke. When I do swallow, I have to chug a few sips of a drink because if I don't, it seems as if I do not swallow all of the food in my throat and I end up inhailing it and I cough for a solid 20-30 minutes. I saw an ent who completely blew me off.
In June, that's when my life seemed to have stopped. One day, something snapped. I remember all of a sudden, when i would close my eyes, my eyeballs jerked hard around and around as if they were searching for something. When I look left or right, my eyeballs jerk as if they are trying to regain focus to the center. Soon after that began, the light sensitivity hit. I have been unable to look at a television,- computer screen and I even have trouble looking at my phone. I cannot watch tv or movies or play video games because it seems as if my eyes cannot quickly dance around a screen in order to take everything in. For example, if I'm watching a tv show and the camera angle goes back and forth from one character to the other, my eyes cannot jump back and forth from face to face. I can't even play a silly game like bejeweled because my eyes have to scan the entire screen to find the matching jewels. If I attempt to watch something or play something, the jerking becomes so severe that I can hardly close my eyes.
Within days of the eye symptoms beginning, I began to have ringing in my ears, severe sound sensitivity, a bit of vertigo.
I have other strange symptoms including - numbness in certain parts of my body like one cheek but not the other, my limbs seem to go to sleep easily with very little pressure put on them (like if I'm sitting on the edge of a chair, my legs will go to sleep), I have pain radiating from my neck down to my pelvis - especially around my spine area and within 2-3 inches off to each side and also, pain in my limbs off and on, instability when I walk because I feel very stiff but also a bit off balance, tremors off and on, muscle weakness, I pee constantly at night - every 20 minutes or so, so incredibly tired but struggle to sleep...
One of the worst parts of this for me is the inability to watch/play things. I know that seems absolutely silly because it is just a tv show or a game but it's a distraction. I spend 99.99% of my time in bed, in the dark because I don't have a choice so to be cut off from reality most of the time, it's depressing.
These symptoms never, ever go away. I have them 24/7. I've had a ct scan of my brain and they found hypodensities on the left caudate of my brain but they weren't significantly changed. When I saw a neurologist in regards to these symptoms, he honestly blew me off. Not joking. He said he had absolutely no idea what these symptoms are and walked out. I'm at a loss and the reason I'm here is because... does this sound like MS? Am I losing my mind? Should I see a different neurologist or a different specialty doctor? I don't even know where to turn at this point.
Thank you for your opinions and viewpoints.
(Ready for my guest singing spot at a Jazz Trio Gig/ Our friend had just told a story)FUN and Healthy Balance!So, it's easy to get off track with goals. This week I've joined several singing contests and just poured my heart into exercising my voice and having fun. It's something I hardly get enough of anymore. FUN!! Wasn't but a couple of weeks ago that it occurred to me.... have I forgotten...
Everyone on a passenger ship could see a bearded man on a small island, shouting and desperately waving his hands."Who is that man?" a passenger asked the ship's captain. "Why is he so upset?""I have no idea," the Captain replied, "but, every year when we pass by here, he goes crazy."