Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hello, I'm Cat.
I feel strongly that I have MS and I would like to describe my experience to see if this seems familiar to those of you who have been diagnosed. I apologize for the length of this post...
In April, I began to have difficulty swallowing. To this day, I still cannot swallow properly. It is as if my swallowing reflexes will not go off. When I push food toward my throat and it begins to slide down, I cannot swallow it and nearly choke. When I do swallow, I have to chug a few sips of a drink because if I don't, it seems as if I do not swallow all of the food in my throat and I end up inhailing it and I cough for a solid 20-30 minutes. I saw an ent who completely blew me off.
In June, that's when my life seemed to have stopped. One day, something snapped. I remember all of a sudden, when i would close my eyes, my eyeballs jerked hard around and around as if they were searching for something. When I look left or right, my eyeballs jerk as if they are trying to regain focus to the center. Soon after that began, the light sensitivity hit. I have been unable to look at a television,- computer screen and I even have trouble looking at my phone. I cannot watch tv or movies or play video games because it seems as if my eyes cannot quickly dance around a screen in order to take everything in. For example, if I'm watching a tv show and the camera angle goes back and forth from one character to the other, my eyes cannot jump back and forth from face to face. I can't even play a silly game like bejeweled because my eyes have to scan the entire screen to find the matching jewels. If I attempt to watch something or play something, the jerking becomes so severe that I can hardly close my eyes.
Within days of the eye symptoms beginning, I began to have ringing in my ears, severe sound sensitivity, a bit of vertigo.
I have other strange symptoms including - numbness in certain parts of my body like one cheek but not the other, my limbs seem to go to sleep easily with very little pressure put on them (like if I'm sitting on the edge of a chair, my legs will go to sleep), I have pain radiating from my neck down to my pelvis - especially around my spine area and within 2-3 inches off to each side and also, pain in my limbs off and on, instability when I walk because I feel very stiff but also a bit off balance, tremors off and on, muscle weakness, I pee constantly at night - every 20 minutes or so, so incredibly tired but struggle to sleep...
One of the worst parts of this for me is the inability to watch/play things. I know that seems absolutely silly because it is just a tv show or a game but it's a distraction. I spend 99.99% of my time in bed, in the dark because I don't have a choice so to be cut off from reality most of the time, it's depressing.
These symptoms never, ever go away. I have them 24/7. I've had a ct scan of my brain and they found hypodensities on the left caudate of my brain but they weren't significantly changed. When I saw a neurologist in regards to these symptoms, he honestly blew me off. Not joking. He said he had absolutely no idea what these symptoms are and walked out. I'm at a loss and the reason I'm here is because... does this sound like MS? Am I losing my mind? Should I see a different neurologist or a different specialty doctor? I don't even know where to turn at this point.
Thank you for your opinions and viewpoints.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...

There are many disorders that sound similar. Bottom line is that you need a doctor that listens to you as a patient, a person first, before symptoms. I would check insurance first and see a list of neurologists that are on your plan, check for reviews on them online, then ask your primary care to set up a referral. You should let them know about this experience so they don't keep sending people there. It's tough to get to the bottom of things sometimes. Hang in there, check back and let us know what's happening.♥