Multiple Sclerosis (MS) Support Group

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Question

RiS
RiS

I 'm  64, have had MS for 21 years, and progressed so now have  PPMS. I've had 3 mini strokes 3 years ago so my left leg  and arm are paralized. I cannot walk so been sitting /getting around in a power wheelchair for about 6 years. It's almost 7 pm so will call my doctor tomorrow but in the meantime any thoughts on why my swollen let ankle - told from not moving- now burns and feels like my toes will blow off! `WTF!!!

Froggie83
Froggie83
My mom suggested gout.. But male sure you see your dr to get it checked
lorrieonline
lorrieonline
I've had trouble with leg swelling. I was sent for an ultrasound of the legs which found everything working, no clots, etc. I was told to try compression socks again. I had trouble getting them on so thought moving more would be the ticket, but the legs still had swelling. When I tried getting them on again, I was able to fight the things and wear them.

Seems they've been helping. There are a number of things the doctor can help with like sending a physical therapist out to help you, and see what's going on. Did you end up calling your doctor?

Are you elevating your legs? I thought putting my more affected leg up on the arm of the couch might help. When I showed the PT nurse, she said, that's good, but if you can get a pillow under your leg too, that would be better. There are some exercises I found on youtube. I don't have a free wall behind my headboard though. (Window wouldn't help hold my feet/legs in a vertical position). I'll attach the video so you can see what is recommended. You may need your aide to help you get in the position but If you have the room, it sounds like it would be helpful.
https://www.youtube.com/watch?v=5LtSFqpRHn4&t=438s

I came across an MS documentary on Amazon, LIVING PROOF. I've now changed my diet back to gluten free and more veggies and fruit, with lean meats, no sweets, etc. I also have PPMS. (following Mathew Embry has been inspiring.)

I hope you've called the doctor....
Hugs, my friend. <3
beckyschaar
beckyschaar
I have a problem with swelling, which makes walking even harder. I wear compression socks daily and elevate my legs.

I think it's good to follow up with your doctor, especially if it's localized to one leg, and hurts so much.

Best wishes for a speedy and accurate diagnosis to help you!
Brandie1970
Brandie1970
As the others have said. Compression stockings. And spend time with Your legs elevated. I'm in a reclining wheelchair. So at various times I can recline back and elevate my legs. Or in bed have My caregiver position My legs in a elevated position.
lorrieonline
lorrieonline
Yes, elevation is something I need to work at better. Too often I just sit down and forget the legs should be elevated, and before too long, they start throbbing. Also if you have trouble moving your legs at times (Lord knows I do) then one of those leg lifters is very helpful.
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