Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
melaniealexis
I was diagnosed on Valentines Day of this year so this is all really new to me. After my initial flare up, I had the taper dose of steroids and I had the feeling in my torso like my lungs were pressing into my rib cage. It wasn't intolerable but hell did it hurt... I had a minor relapse this month and my dr prescribed a 12 day dose of oral steroids and again, I am having this pain in my torso. It feels like it is under my sternum and wraps around to my back. It lasts about 30 seconds at a time and comes and goes. Is this the MS hug? does anyone else experience this after steroid treatments?
Thanks guys...
Thanks guys...
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I presented the question to my neuro and I didn't get a good response. I mentioned that with three days on infusion and then a week to see if it helped, could it not just have been the time in between that things just calmed down in 8-10 days? hmmmm.
Steroids thin the skin, break down the bones and cause a number of issues and at the number of mg prescribed for MS, I'm quite sure they cause too many issues for me to ever take them again.
They are always the miracle fit when the medical community has no idea what else to do. Keep that in mind. We don't need to be lowering our immune defenses with this.
This is just an honest opinion, certainly I'm no doctor. I'd try to go as natural as you can.
Yes sounds like the hug. Mine use to come and go, now it's permanent.it's actually better now than before. Stress, heat, makes it worst. So when it comes do your best to breath and relax.
I save the use of steroids for really big stuff, not things I can manage for a while. Ex, if I'm seeing poorly, but still see,, then I'll wait for my body to respond,, if I'm blind, I want steroids. Like lorrie said, usually in a week or so, it's better on it's own and our bodies had the opportunity to react.
Alma
When I stand for more than 15 min at a time it gets so bad I have to ask to be allowed to be seated.....
Good luck,
A.