Sorry spell check messed up...*but*

No one is responding to your post because this change is hard to understand. I have leg weakness, also but been told by my primary and neuro that it's part of the disease so I guess we have to suck it up like everything else!

Thank you so much ris! For some reason a neurologist told me that ms affects only one side or the other not both legs at the same time? Are both your legs equally weak?

Curlykraut~am I understanding correctly that you have Fibro & MS? How do you deal with that? Doesn't Fibro like heat where as MS likes cold? Your body must be in constant confusion. Which do you treat? If I have any heat I can feel my body start to act up. My neighbor has Fibro & she thrives in warm water. My neighbor & I were going to do water aerobics together & we discovered how differently the diseases react to water temperature. The leaders of the MS group & Fibro group told us how the pool temperatures had to be set warm for Fibro & cool for MS. We didn't realize the water Temps were altered for the specific classes. We thought it was just a group bonding activity with pool aerobics. Sorry my long explanation for my questions but have you discussed with your neurologist what body temperature you should be shooting for? Maybe if you go for MS treatment & do cold showers, baths, and room temperature that will help with keeping the weakness at bay. To answer your specific question regarding weakness in both legs, everyone presents differently. My left lower leg was my original complaint. 1 day it went tingly & has never recovered. I feel like after years of dealing with this my right leg gets tired out quickly. Physical therapy helped strengthen my legs & helped my balance. I have at home exercises that I can do by myself & if I stay faithful to spending the 20 minutes a day to these exercises I can tell a difference. Have your neurologist set up PT for you. I hope you get some answers.

dsprt4help
Hi thanks for sharing your experience, in answer to your question, I have always been heat sensitive since my symptoms started 8 years ago. They diagnosed me with fibromyalgia 7 years ago after doing all the tests and mri (which showed no leasions). however my doctor wants to repeat the MRI due to increasing symptoms, that meds aren't helping. So it's possible that I was misdiagnosed and it's been ms all along??? Not sure yet. Heat kills me, is what I tell people lol. I take cool to cold showers and baths. I will find out when the MRI is scheduled for tomorrow and repost. Also I just yesterday started a vegan diet in hopes of getting rid of the toxins that might be aiding any disease process. Nice chatting with you. ☺

My daughter has fibro and I have MS. So we are always in disagreement about the temperature in the car and house. My daughter gets weakness in her legs. My legs get stiff. I have read that some MS patients have muscle weakness. That is a common symptom of MS. I do hope you find answers so you can be treated with the right medicine. A healthy diet will always benefit us. Keep us posted.

Thank you djbritt, for sharing. How long has your daughter been diagnosed with fibromyalgia? I can only imagine the temperature issues!! Hugs to each of you! J

My experience has been both leg stiffness at times but also weakness. The stiffness or "spacticity" I have mainly combated by adding magnesium to my diet years back. I used to wake with a "charley horse" quite frequently. Magnesium has helped that. The weakness or fatigue can be very frustrating. The big thing is to try to remember to pace myself. Hope this helps. <smile>

My primary problem is spasticity (stiffness). My neuro says I'm lucky bec at least it might keep me up (some others he treats have the opposite problem). My muscles are now not as strong as they used to be, but that isn't what you mean by weakness, is it?

Thank goodness my MRI came back as no MS, but mastoiditis. I have an appointment with my Dr this Tuesday. Thank you to everyone for your support

PLEASE PLEASE PLEASE look into Juice Plus+ guys. I feel so good. And my friend that actually introduced me to it, has (had) fibro and after starting 5 years ago, she hasn't had symptoms. She said it saved her life. It's literally fruits/veggies/berries in capsules. Nothing artificial or synthetic. My neuro approved it, it's just food.

Ok i will check it out

I have MS. In the beginning my left side would get numb and the right side spastic. When I have a relapse it always starts on the left side . Now my leg wants to drag, the toes want to drop which makes me trip, and the whole leg gets weak. This last time both legs have ended up feeling rubbery but the left one is still worse.

I have Ataxic Cerebral palsy, I have read that the symtom's In Ataxia are similar to MS, But are very different, I do Have muscle weakness.......well hypotonia, which I guess is almost the same thing as muscle weakness