Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

finally, a new doctor

mixedupmelly
mixedupmelly
I finally got a referal to a new doc at Vanderbilt in Nashville. I'm playing the waiting game called when is my appointment, but the doc has come highly recommend ed by close friends. Woohoo!
My medical records are supposed to be sent over, but I'm taking copies of what I have just in case, and I've kept a symptom diary to track progression. I'm going to ask her to redo the mri and include spine with and without contrast. I'm not fond of the idea of a lumbar puncture, but I will go that route if I have to. I know I need to Waite until she gets my blood tests to decide if additional testing should be run, but does anyone have suggestions of things I should either take with me, ask, or ask her to do test wise?
Right now I just want a doc that will listen, tell me what's going on in my body, and treat me like a person and not a pay check or throw meds at me. I have a life. I like my life. I just need help figuring out how live my life with the constraints I have.
lorrieonline
lorrieonline
Good luck with your new doctor. The only thing I can think of right off the bat is to be sure to take a pen and paper, perhaps take someone with you. It has always been helpful to me to have another pair of ears there. It's easy to miss some little things. Sounds like your log of symptoms will be very helpful. As always, jot things down that you think to ask, as they come up. That way you remember when you get in there.

:)
lchoppel
lchoppel
You're a key player in your MS care. Nether the neurologic exam nor an MRI can tell the doctor everything that's going on in your body. This means that even the most experienced of MS specialist physicians can't do the job alone - your input is essential. The point is, your healthcare providers need information that only you can provide. This information includes the following: 1) symptoms you are experiencing; 2) physical or emotional changes you've noticed since your last visit; 3) problems or side effecs you're having with your medications; 4) difficulties your having with everyday activities at home and work.

Unfortunately, your time with the doctor may be limited. So the best strategy for using that time well is to come pepared to talk about any problems you're having. If you have a whole litany of problems, try to prioritize them in your own mind before telling the doctor. Chances are that everything can't be addressed at once, so you and the doctor need to tackle the most imortant things first.

As Lorrie suggested, taking a partner or good friend is essential. So much will be discussed you are bound to come out feeling overwhelmed. If you cannot take a friend, try a tape recorder!

Your log of symptoms is key. Take a copy to give to your doctor and let him keep it for his medical recods.
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