Multiple Sclerosis (MS) Support Group
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Dealing with MS and special need child
Rincewind2702
I need to now if there is anyone else out there who suffers with MS and who have a special needs child.
I lost it this morning, my little angel is Autistic and very structure dependent, but she can also be demanding and is great with manipulation. I was getting ready for work, I come into the office two hours before everyone else, my brain goes to mush about an hour before my workday finishes. She was being demanding, asking for the same thing over and over and over again, it is part of the Autism. I just could not cope with it this morning and started having a small panic attack, I was starting to run late for work, I shouted at her to please keep quite.
I feel guilty for doing that. It is not her fault that she has Autism, I just feel like crawling into a hole and never coming out again.
How do you cope. I am tired, I get up at 04:30 in the morning to be at work by 06:00, I get home at 15:30, I try to have a little rest before preparing supper. We eat once everyone else is at home and then go to bed, I start the cycle again the following morning, I am always tired. What can I do??? I am losing myself, I hate this monster that has taken over my body and I need to be able to be there for my little angel, I feel worthless, because I can't even do that properly anymore.
I lost it this morning, my little angel is Autistic and very structure dependent, but she can also be demanding and is great with manipulation. I was getting ready for work, I come into the office two hours before everyone else, my brain goes to mush about an hour before my workday finishes. She was being demanding, asking for the same thing over and over and over again, it is part of the Autism. I just could not cope with it this morning and started having a small panic attack, I was starting to run late for work, I shouted at her to please keep quite.
I feel guilty for doing that. It is not her fault that she has Autism, I just feel like crawling into a hole and never coming out again.
How do you cope. I am tired, I get up at 04:30 in the morning to be at work by 06:00, I get home at 15:30, I try to have a little rest before preparing supper. We eat once everyone else is at home and then go to bed, I start the cycle again the following morning, I am always tired. What can I do??? I am losing myself, I hate this monster that has taken over my body and I need to be able to be there for my little angel, I feel worthless, because I can't even do that properly anymore.
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Hugs,
~Lorrie