I have had MS for 25 plus years with RRMS. I have been on many of the meds and have had mostly lesions on the brain. No trouble with motor skills. I still can run and do strenuous work. About a year ago I was taken off Tysabri (jc positive). I didn't like any of the alternative medications so I went off all meds and was trying alternative treatments. Just after new years, I was experiencing balance and control issues as well as a loud ringing in my ears. After a 2 week course of decongestants, my ENT doc saw no fluids in my ears and ordered an MRI. It came back with 5 lesions on my pons and brain stem as well as many throughout other areas of my brain. I am now nearly deaf in both ears as well as blind in my left eye. I have difficulty sleeping more than 2 hours at the time. My balance has improved some but is still not good. I am going to my neurologist tomorrow morning. I am a little frightened about my future.
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