I just went back to the neuro yesterday after my one of my yearly MRIs seemed to show a new lesion developing, prompting him to order a nerve-conduction test for my legs - and once again, he doesn't know what's wrong with me. The nerve test was in normal range - which seemed to surprise him. This time he said "it might be MS or it might be some other autoimmune disease." I have hand/foot tingling/numbness, what seems like L'Hermittes, overactive deep tendon reflexes, some balance issues, startle issues I never had before, etcetcetc. Latest visual field test showed a bit of narrowing in one side but I'm also getting older so it might just be that. I have a bunch of brain lesions on the MRI but he says they're atypical. I have one cervical lesion but it too is "atypical." Now this very faint midspine shadow that he said might be "from breathing" - which actually is kind of funny. Except it's not. I'm at twice a year visits and "come in if anything develops." I feel ashamed to be frustrated by this when so many of the people in the waiting room are so much worse off, but it's kind of hard to adjust to living with this uncertainty. Another thing is that I live in Japan, where MS is not nearly as common. My neuro is one of the best MS people in the country, and he's actually also a good guy and very dedicated - sat with me for over an hour after my lumbar puncture (negative, of course) - so no real complaints there. Sometimes I just wonder if he has as much experience as people in a "Western" or European nation...Anyway, just wanted to vent, thanks for listening. Nobody else understands why not having an answer is so hard and how I actually would almost be weirdly relieved by an MS diagnosis at this point!