Multiple Sclerosis (MS) Support Group
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Appalled By peoples disbelief toward me and my ignorance toward my MS,
Im sure that I suffered as a child with some of the symptoms MS forced or forces on the human body, for example, Fatigue, Headaches, Muscle pain and stiffness but because of my familys lack of knowledge toward the illness the symptoms were always put down to attention seeking,
I grew up believing that the way I was, was totally normal, even in my Army days I struggled, believing I was weak.
Today I know what all my issues were about and what held me back, Im so happy now and find it really hard to let any of my MS symptoms faze me or allow them to bother me.
Im so proud of myself for fighting through when I was so Young, and now for being who I am....
But there are people out there that dont believe my tolerance toward my condition and resent me for being so care free and very open and out spoken about MS,
All Im on as far as medication goes is Baclofen and nothing more....I have lived with pain for many years and miss it when it gone.....
I just lost the use of my legs but hey...I got wheels.
Forgive my audacity and humour, but life is for living better to live and be happy no matter how Sad life may be.
All the best to you all.
Jim xx
Im sure that I suffered as a child with some of the symptoms MS forced or forces on the human body, for example, Fatigue, Headaches, Muscle pain and stiffness but because of my familys lack of knowledge toward the illness the symptoms were always put down to attention seeking,
I grew up believing that the way I was, was totally normal, even in my Army days I struggled, believing I was weak.
Today I know what all my issues were about and what held me back, Im so happy now and find it really hard to let any of my MS symptoms faze me or allow them to bother me.
Im so proud of myself for fighting through when I was so Young, and now for being who I am....
But there are people out there that dont believe my tolerance toward my condition and resent me for being so care free and very open and out spoken about MS,
All Im on as far as medication goes is Baclofen and nothing more....I have lived with pain for many years and miss it when it gone.....
I just lost the use of my legs but hey...I got wheels.
Forgive my audacity and humour, but life is for living better to live and be happy no matter how Sad life may be.
All the best to you all.
Jim xx
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Keep up with your Neuro Bachlofen is good, use it myself, You may want to consider taking something to slow the progression, something like Rebif , I use this too, there are many types. Was 44 when Dx and as a result MRI shows a lot of old activity
Anything you take isn't a cure but how about keepin the quality of life you have now? Just something to think about , I ignored my symptoms until the Optic Neuritis , my last flare has left me heat and cold intolerant, Heat makes me rabid and cold one big knot of muscle. have lost some vision too. don't know if the rebif is helping doesn't seem to much but they say I need to be on it a while and that it doesn't fix anything just slows progression.
Good luck and Good health to you
Hugs,
~Lorrie
lose their arms- well -u- get the picture, im sure it gets you sometimes, you are human- right??? ha!! big hugs jim tickey
i so hope you get your legs back- it does happen!!
Then as the cursor hovered over your avatar, I saw that indeed we do. As I don't have a passport, there's no risk that I'll ever find myself in southampton, HAM, GBR.
I've read accounts from others who've shared similar experiences, but I've never even remotely experienced it personally.
"Forgive my audacity and humour..." Why, what's to forgive ? In all candor, if you aren't familiar with http://www.bbc.co.uk/ouch/opinion/b1tch/ you had best befriend her post haste !
I have found that with a couple relatives extremely wealthy, that they treat me as a leper, and ignore me.I have learned the scary ways at the deteriorating 24 year mark of this disease, that I'm much better off without them, eliminating outlay of needed energy due to added stress on muscles abnormally operating against the muscles I have lost neuro connections between.
Best off alone, I find,with no exertion for other people, no 'showing' for them, just nothing. What few years I have left, I choose to spend peacefully, and very quietly. I know at my age, my days are numbered with the havoc already reeked by this disease and it's horrific side-effect medicinal treatments.So why hurry the ultimate along with added outsiders' jabs regarding my failure to be a high-production let alone high-profile person?
My disaproval shows to others by my silent boycott.At this point, that speaks for me as if I were normal again and able to say it with the strength of voice I once had.
Maybe a polite way for me to say 'Good riddens to bad rubbish!".
-leading to this day a tiny, well-hidden life