Multiple Sclerosis (MS) Support Group

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Anybody start/stop/restart their treatment?

melaniealexis
melaniealexis
I started Tecfidera when it first came out and was my Dr's first patient on it. I had no side effects and had great MRI results, but I stopped the treatment when I got pregnant. I have been off of it for over a year and am going to restart, but was curious if anybody had restarted a treatment after a long break. Was it different or the same? What should I expect?

Thanks!
mteverest
mteverest
I have stopped Copax due to some side effects and have not started again yet. So hard to get yourself back to injections after a nice long break.
melaniealexis
melaniealexis
I had to stop the Copaxone due to site reactions, stopped Betaserone for the same reason plus having MAJOR anxiety over the needles. Dr wanted to try Avonex but I said no so we started the Tecfidera and I was doing great but had to stop while I was pregnant and want to get back on it, but I'm nervous it wont be as effective as it was before I stopped....
lorrieonline
lorrieonline
I haven't taken anything like that in a while. Just can't see that it actually helped anyone. They really haven't proven that as far as I can see. I read something that there is something in clinical trials said to reverse some symptoms though. Darned if I can find it again. There may be hope on the horizon.
Summoning
Summoning
I stopped Copaxone because I hate needles and I kept getting that side effect that it feels like your dying for a few seconds. I still dont like needles, but I am back on it since I only have to two it 3 times a week . I have been on it for a couple months and not once did I get any bad reactions so that is good
melaniealexis
melaniealexis
Just an update, I did restart my Tecfidera and no side effects. Last time I was on it, all of my symptoms improved and my MRI showed no new lesions. On all th other treatments, I had multiple new lesions active and inactive but on the Tecfidera, I had none. Hoping it does as good the second time around after a year of stopping.
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