Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
kiakim
Wow, I have only been on copaxone for almost 30 days and am sick of it. Everyday atleast once a day I think to myself can I do this for who knows how long... the rest of my life? I know its better than the alternative but these lumps I am getting are sure irritating.
When I started it was fine, like a bee sting but now I am getting lumps almost everytime. I do manual injections and my sister helps me out for the hard to reach spots(to which I am grateful for) The other day she gave me my shot and when it was done I walked into another room and started crying. I don't know maybe I am just having a bad week. I have not even officially been diagnosed with MS so sometimes I think why am I doing this. I feel healthy. My MRI says different apparently.
I am just irritated with life right now I guess. Its just hard to think that there is no "date" of when my last shot will be, there's no end in sight.
I know I should be grateful for so many things, and I am but I'm in a funk right now.
I just realized I probably should have posted this as a journal entry! Sorry, thanks for listening though
When I started it was fine, like a bee sting but now I am getting lumps almost everytime. I do manual injections and my sister helps me out for the hard to reach spots(to which I am grateful for) The other day she gave me my shot and when it was done I walked into another room and started crying. I don't know maybe I am just having a bad week. I have not even officially been diagnosed with MS so sometimes I think why am I doing this. I feel healthy. My MRI says different apparently.
I am just irritated with life right now I guess. Its just hard to think that there is no "date" of when my last shot will be, there's no end in sight.
I know I should be grateful for so many things, and I am but I'm in a funk right now.
I just realized I probably should have posted this as a journal entry! Sorry, thanks for listening though
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Lets stay strong!
I know how you feel with the shots, I knew I could not inject myself every day and stick to it so I chose Rebif. While I have been lucky and the only side effect has been a fever but that can be controlled with Aleve. You are just going to have to remember what the alternative will be if you stop.
You can also alway try a different med like Rebif and only have to deal with the shots 3 times a week. I hope you can stick to it but if you can't you need to talk to your neuro about changing to something that you will be able to stick to. Good luck and hopfully thing will get better foor you
It does get better. I have good weeks when I do not even have a mark from the shots, then there are other weeks I get big lumps and buises. (this week is one of the lumps and bruises)
I do wish you the best and i know it is not much but know you are not alone.
I hope you feel better soon, Lisa
I know we are all different, but considering that the medication will not guarentee that you will not get a flare and as my neuro explained to me, it will not protect us from a catastrophic flare, I decided that the shots (and lumps and horrendous expense) was not worth it.
I think you need to have a good heart to heart with your neuro about the quality of life issue you are having. Something so depressing as taking a shot every day can't continue for you. Hopefully this is just a "funk" as you say, and you will be able to wrap your arms around having to do this for the rest of your life. I was not so lucky and couldn't do that. Who knows what might happen with me, but I may have to be dealing with that dilemna myself soon.
Hang in there, and feel free to rant here vs. journaling. Often journals are missed by readers, so it is good you posted here.
Another trick I have come across is Arnica gel. It's sold at health food stores. It is an old gramma's trick to reduce swelling and bruising. What are our lumps.... swelling. So you do your injection wait 3-5 minutes for the injection whole to seal. Take some of the arnica gel and rub it around your injection site. Now here is my idiot disclaimer. Arnica gel is a natural remedy. To get the gel to last they put Alcohol in it. When you are applying it do not... I repeat do not push the gel into your injection hole. Alcohol burns when you do this but it works really well for me. Put it on and let it air dry and your lump ( at least for me) won't hurt near as bad. I only have to use the gel once or twice a month since I do my shower trick and my air bubble trick. Hope this helps
I saw my neuro doc this week and he says that the oral pill is on the horizon that is really promising. He doesn't want me to go on the other oral drug because I am over 50 and he says that there is a heart risk but the new pill soon to be available within the year is promising so stay with it and you will probably be able to go off the shots before too long.
And the shots do get easier. I am on Avonex now and like those people better than the Rebif support. I got scar tissue from my Rebif shots but I don't get them from the Avonex shot because it is in the muscle.
I have only been on copaxone since 19th last month, what I have found with the injections is to use the ice pack which came with the injections, it stops the stinging then I massage the site or just use my hand and go around very slowly with no pressure, it was my MS nurse who told me to do that, I might get a lump but next day its ok,
one reaction I've had was a couple of days ago as there was no one to help me I did it myself, it was stinging and red and hot but its ok now its not something I will try again, I will wait for someone is here to help me