Migraine Headaches Support Group

Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.

1 Online
  • Sau

    Whole body migraine

    7
    Im 34 and 2 years ago I had a seizure and was diagnosed with epilepsy. Last year I started having all kinds of odd symptoms and I was told I could have ms and to go see a specialist. Went and saw the ms doc on Thursday and was told that it's not ms or epilepsy, but a whole body migraine. Has anyone ever heard of this or does anyone else have this on here. I'm having trouble understanding how a...
  • nxa

    my story

    4
    Hey I am a 16 year old girl and this is my story for the past year and a half I have suffered from a daily migraine and since may I have been on at least 8 different medications 1 MRI and have 5 er visits. I have been seen by the same doctor the whole time and don't think she is effective even though my mother says she is she has never asked to see my migraine log within the year I have seen her...
  • silverlight

    Useless Neuro Appt....

    9
    So,now that my morning headache has faded a bit,i feel i can write here....Yvette,if you are reading this,you were absolutely right about my neuro visit..first of all,i was terrified of meeting him becuase of all his terrible reviews online,but i went anyway..he obviously hadn't read the reason i was reffered from the ER,and asked why i was there... because he was so cold,i felt confused and like...
  • oceans11

    Cologne experiment

    5
    I went without using any cologne for 30 days & within that time did not have any migraines. The day I put on one of my favorites it only took about an hour before I started to get the "aura". I'm in that phase now & about 60% of the time I don't get any pain but will suffer from light nausea & mailaise.Most of us already know that heavy smells & foods we're not used to can cause migraines. Oh...
  • MrsNoodles

    Disability

    3
    Has anyone been awarded disability due to their migraines?
  • azgal49

    Daith Piercing

    9
    Hi everyone! I know I haven't posted in a very long time.  I was wondering if anyone has gotten a Daith Piercing.  Two of my cousins, who have suffered with migraines for a long time, had it done.  One of them went in to get the piercing when she was suffering with a migraine and the second the piercing went in her migraine was gone and she hasn't had one since....that was 4 months ago.  She...
  • petrofinder

    2 years of head pain straight

    1
    hello all- new to the forum but curious if any one else has a similar condition. I have had 5 concussions in 2 years. Two were open head. The result constant and severe head pain. I have been to more doctors then I can count, including Michigan Head and Neurological institute as an in-patient at there hospital for 3 weeks. This week I started an injectable dhe protocol that took my constant 8-10...
  • KCxo

    Omg I feel like my head is about to explode. Help

    2
    I'm in so much fucking pain.im sick of this shit. I can't take it anymore.i get hormonal migraines and I thought coming off the pill would help. I was told it makes them worse. I was told it was the drop in estrogen levels.its not helped it's actually fucking worse. I can't go through this pain every month. Knowing waiting expecting.how can someone not work out why what's wrong and fix it.and my...
  • deleted_user

    Perfume Triggers

    6
    How many others have perfume/chemical smell triggers and how do you deal with this? In my own how I've banished all candles, perfumed beauty products, cleaning products, etc, but when I'm out in public or at work, there are SO MANY people who use perfume! I'm super sensitive to it so even the smallest amount will trigger a massive migraine in about 6 seconds. I work in an office with several...
  • Treydo

    Migraine/tension headache gone wrong

    2
    I'm new to this.I have had a migraine for 1 year now. The muscles became tight in my head  and neck and then the muscles just continued to become tight over 90% of my body. I had my first botox last month. It helped allot for about 2 weeks and now has mostly worn off. I'm suppose to get them every three months but am not scheduled for another on until the end of March. I would love to hear from...
  • Jesusislove

    Occipital neuralgia

    3
    Hey everyone I'm new here. looking for any support I can get. A month ago I started having bad migraines. they just keep getting worse. the worse thing about them is they never completely go away. I'm very lost. And I feel betrayed by my body. Doctor thinks it's Occcipital neuralgia. Not a lot of effective treatments so far. But i'm trying to stay positive .
  • ryverrat

    Anyone with experience using cefaly?

    4
    I'm trying to get away from using Botox because of the expense and away from meds because I am now taking more for my asthma.  I've had success with TENS units for muscle aches and stiffness in the past.  In fact I really like my TENS unit.  So I got a script from my migraine DR for cefaly.  I was just wondering if anyone here has any experience or advice before I go spend $400 on a unit. ...
  • wilsonjr90

    Migraines

    2
    Hi my name is Steve. I've had migraines sender early child hood. I get them so bad I have to go to the ER for them to give me a knockout shot and it works. It's the only thing that works.
  • daninflorida

    Is peanut oil a trigger?

    5
    I know peanuts are one of the worst triggers because of a chemical that's in them, but what about peanut oil?
  • Tycoda

    If ice cream helps your migraines, READ THIS!

    3
    Hey everyone, new here.I've struggled with migraines for 17 years now. I wake up with a headache 5-7, that turns into a full blown migraine 9-10 very quickly. This has been happening on and off for 17 years, sometimes for months on end. 3 months and counting as of Feb 3.I've never found a migraine medication that helped me. I've been on Tramadol for years now (Opiod painkiller), the only thing...