Medical Mysteries Support Group

This community is dedicated to people who suffer from an illness that has been difficult to define. As advanced as modern medicine is, there still exist many cases where doctors cannot pinpoint an exact cause for pain or other symptoms. Suffering with any illness is certainly difficult, but suffering with an illness that cannot be identified can be especially difficult and trying.

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  • lisa4shane


    Anyone out there have dysautonomia with no known cause? I have been diagnosed with autonomic dysfunction among other things. My symptoms are widespread. I have extremely low blood pressure (as low as 40/20), either too cold or too hot, widespread pain, vision problems, fainting, headaches, excessive fatigue. I have also been diagnosed with fibromyalgia, migraines, pancreatic insufficiency,...
  • I know everyone on here has struggled with so many of the same things that I have. I have been plagued with illness for what seems like my entire life. Severe digestive issues, female problems, severe depression and anxiety, chronic pain, and a million other things. I got to the point where I finally gave up and just though that was how I was going to have to live that way. And I had even decided...
  • A search for pursed lips shows determined looking faces with breathing through the nose. A stiff upper lip stance gears up the system in a handy way. This can be explained by acupressure (acupoint gv26).But how come that the standard medical explanation with relatively slack lips is so different? R.Friedel
  • I am here out of utter desperation after suffering from this for almost a year now. I have seen four urgent cares, two general practice doctors, two allergists, a dermatologist, and an ER. Some have given me medications to help suppress my symptoms, but none have been able to tell me what is causing these relentless symptoms. My story is a long one, so I sincerely thank any and all who take the...
  • I must have tried about 30 different painkillers by now - from mild analgesics to opioids (at the hospital), nothing works on me and it never has, same thing with local anastaetics. I don't even get any side-effects.I am prone to accidents (I've lost count of the times I've dislocated something or pulled a tendon) and suffer from migraines with aura and allodynia (every touch is extremely...
  • Hi, I saw this website on good Morning America a while back. It is a website that helps you find out what may be wrong with you when no one else can. It has many different dr's and you pay what you can in a donation. It is called I wish everyone well and I hope this infomation about this web site helps you get some answers and helps you get your life back.
  • equinegurl

    Shot in the dark

    Hello, I just thought I'd throw this out there, my doctor has no idea what's going on and I am miserable so I would appreciate any and all advice. I have had chronic join pain for years, about 5 years ago I had started noticing it more in my hip, which became far worse last year. Had an MRI that showed a labral tear and bone cyst. Went to surgery, ended up fixing multiple larbral tears, removing...
  • Here's another one. When ever I take antibiotics I have severe side effects from the large bowel. My gastroenterologist said he has never heard of something similar before and that he can't imagine how antibiotics could cause those effects. Anyone who has heard of this before?
  • Toward the end of August, I went in for an endoscopy...before the procedure, the doctor examined my abdomen...when he felt my abdomen, he was alarmed because it felt very hard and seemed to be protruding. He asked me what it was...I told him I wished I knew...I have been asking this same question for nearly 5 years. About 5 years ago, I suddenly began gaining weight...went from about 100 pounds...
  • Crystalenia

    Allergy Mystery

    I'm posting this so that perhaps someone who had the same issue can help.Since I was a child I kept over reacting to stuff like mosquito bites, heat, cold, stress, etc. The last 5 yeas I started getting some allergy-like symptoms with excessive itching and various skin reactions (redness, sore skin, bleeding in the most unimaginable spots, bruises, heat of the skin) and every time I have to rush...
  • Jessie12290

    New Here

    Hi all,I am new to this site and group. I was a bit surprised when I found this group because, I actually didn't think others were a mystery like I. Well I joined this group not only because, I am a mystery patient to all doctors and specialists I have seen but, also to see If others themselves have this issue,have come across it or know someone who may also have it. Well here is my background...
  • Hollywood8687

    Arms twitching

    I have been sick to my stomach, along with having weird twitches in my arm all day. I have been diagnosed with RA, and I have fibromyalgia. I've had this happen before, and my doctors/ specialists couldn't find the reason for it and told me it was part of my fibromyalgia. I'm still worried there may be something else (yet another problem for me) going on because nobody I know with fibromyalgia...
  • My boyfriend is 32 and has been experiencing throat and chest pain for at least a year. He coughs up blood on a daily basis. Not large quantities and more-so in the morning, but enough that it's noticeable and very worrying to the both of us. He also coughs up mucus frequently. Sometimes he has difficulty breathing. After having chest x-rays that showed spots on his lungs, we saw a pulmonary...
  • ChattDana

    Mystery Stomach pain

    Hi,I have acid reflux but every couple of months when I get very angry (almost like a rage feeling--I've noticed this ragey feeling happens every 8 weeks or so..I am premenopausal 41 years old) the next day my stomach feels like someone is stabbing it. The pain comes in spasms. I thought I had gastritis or a hernia, but my doctor who did an upper GI series/barium swallow said there is nothing...