Please bear with me as this is only my second posting to a group on this website.
I am 21 years old and have an undiagnosed illness and seem to be getting no-where. When I was a child I was underweight but healthy until I got to age of about 7/8 when I gained weight, I was then sent to see a Dietician to try and loose the weight with no luck. When I was 16 I started having severe pain in my stomach and went to see the Doctor who said I had an inflamed stomach lining and was advised to cut out as much caffiene as possible which I have done and to this day I never consume caffiene unless it is in a bit of chocolate. This then settled down after some medication.
Then when I turned 19 I started having bad stomach pains again but they would come and go. When I was 20 I suddenly started loosing weight, I was in size 14-16 clothes then went down to 10-12 and then drastically went down to a size 6! Without trying to loose the weight, I was having toilet issues and it would take me at lease 2 hours to get ready as I was constantly in and out the loo. Eventually my Mum said I needed to take a visit to the doctors, which I did. They did an examination on me, asked for a stool sample, some bloods and referred me to the Gastro department at the Hospital. All my bloods came back clear along with my stool sample.
The gastro decided they wanted a Gastroscopy, Colonoscopy, Ultrasound and to see a Dietician. They thought it was IBS and that is what they are still saying. I went through with the Gastroscopy but only just, I suffer from Anxiety and Panic and hate hospitals so it was a big ordeal and it took me over a week to completely get over it. and so they decided that the colonoscopy wouldn't be a good idea. The gastroscopy came back clear along with the ultrasound and the dietician has tried me on a low FODMAP diet however that hasn't worked and she doesn't believe it is completely IBS due to my symptoms not matching up to most IBS patients symptoms. So I am still awaiting results from that! Thats one mystery illness for me. Another is my feet! Since I was little I have suffered with chillblains, they were managable and I would only suffer for a few days a year, this then gradually got worse as I got older. To the point where during Ocotober and April my feet are in constant agony, I can't walk, I can't shower, I can't wear shoes and I can't go out. The doctors told me to keep my feet warm and never allow them to get cold, however I would do this and they would still be so red, swollen, itchy, burny! Last year I ended up in A&E as they were so bad! If they arent red and swollen they are blue! Even summertime I have pain if they get too hot. So the doctor sent me to have blood tests done, all came back 'normal' so the next thing they did was refer me to a Rheumatologist! Well they were wonderful, they listened they asked for more bloods and they said that they believe it is Atypical Raynauds, along with sending me for more bloods they gave me Losartan to try and get the circulation working, well I took them and my feet got worse, so I did as they told me too and stopped taking them as the pain was so bad! Went back again yesterday in the hope that they would tell me some good news that they knew what was going on, instead they said 'your bloods are normal so nothing to worry about, come back in a years time! If the pain gets worse or you get ulcers come and see us sooner otherwise see you in a years time.' I went in with a list of other symptoms like pain when being knocked even the slightest, aches, tired, no energy and a pain in my right arm down to my finger but they didn't want to know. So now I have no clue whats going on and have to put up with the pain. I dread Winter time as I know I will be in agony and will miss out on a lot of things due to not being able to go out anywhere. It isn't Raynauds as I know a lot of people with this and they don't have the symptoms I have. I am feeling at a complete loss right now as I just want to know what is wrong with me so I can try and manage it. Thank you for taking the time to read, I know it is long and I have missed out quite a bit still. Jess x