Insomnia Support Group
Insomnia is a symptom, rather than a disease, and is characterized by inadequate quantity or quality of sleep. People with insomnia complain of difficulty falling or staying asleep, which results in significant impairment of daytime functioning. Insomnia is categorized as transient (shorter than one week), short-term (one to three weeks) or chronic (longer than three...
mszach
I started having issues with insomnia when I was in my late 20's, at that time I attributed it to stress and anxiety. I was given a small dose (.5 mg) of Ativan, problem solved, at least for a while. Unfortunately, I became involved with a doctor who's main goal was to seemingly amp patients up to very high doses of benzodiazepines. I was not aware at the time the dangers of this practice and became dependent on Klonopin and by 2010, I was taking over 4 mg a day, sometimes as much as 6. I use the word dependency and not addiction for a reason, I believe there is a big difference. I was using the drug to knock myself out at night as my insomnia seemed to get worse, he added Ambien into the mix :( This doctor also ascertained that I had ADD (at 32) and put me on Adderall, took myself off after 6 months :) In most cases, I do not put blame on doctors for someone becoming dependent or addicted to medications but when I look this guy up online, I see 15-20 other people with similar stories.
Fast forward to today, I tried to go off benzos cold turkey in 2010 and had a horrible time, reinstated after 60 days of hell. I am currently taking .5 mg of Xanax for panic attacks (twice daily) and 1 mg of Klonopin for insomnia along with Remeron and Trazodone. Over the past 20-30 days, after a year (or so) of sleeping reasonably well, once again I have developed terrible insomnia. I will admit that I've doubled my dose of Klonopin on occasion to induce sleep, it hasn't work. I've added Xanax at bedtime per my doctors approval, it hasn't worked. I've also tried 100 mg of Trazodone, although it's helped a little, it often causes horrible sleep paralysis. More often than not, it takes a good 45-90 minutes to fall asleep and lately, I've been waking up after about 2 hours of sleep and been getting between 4-6 hours a night, not nearly enough for me. I refuse to take any more than 2 mg of either Klonopin or Xanax and if I combine the two, it's 1 mg of Klonopin and .5 mg of Xanax. I do not drink, smoke, take pain medication or use any other drugs including marijuana.
When I went through benzo withdrawal in 2010, I literally went 45 days sleeping less than 30 minutes a night and became very ill, also worried at that time I had developed fatal insomnia or some other horrific neurological condition. During that period, I was on a myriad of antidepressant medications to induce sleep, none of them worked, in hindsight, I think they made it worse. Seems like benzos are the only thing that's ever worked and now they're failing me, so I'm frightened. I had a sleep study in early 2011 that was normal, no sleep apnea. Had a brain MRI for numbness and tingling a couple weeks ago that was normal, not sure if that matters or not but I figured I would mention this. Seems like only a few diseases have insomnia as a symptom and these conditions are relatively unpleasant to consider. I realize that there are diseases that cause insomnia like liver disease or chronic pain but I do not have these issues. The muscle pain I have is due to exertion and goes away when I lie down.
May seem like this is a dependency issue and should be addressed somewhere else but my main problem is sleep, if I don't sleep I get very ill and can't function. Over the course of my 12+ years of insomnia, I've tried most of the antidepressants that make you drowsy. Ambien was not very effective and Restoril was useless to me. I could take 10 mg of Ambien tonight and stay up and watch television, it simply doesn't work.
Does anyone else here have treatment resistant insomnia? Seems like a high dose of benzos or Ambien will knock anyone out, can't help but think that I may be suffering from a serious condition. Since I started having insomnia back in 2000, I've also developed some strange (undiagnosed) neurological problems like muscle twitching, weakness/fatigue, muscle pain and lightheadedness (not vertigo)
Haven't come across too many people who've been sympathetic, including doctors. I started exercising again a couple weeks ago, walking about 2 miles a day at a brisk pace which is a lot for me, hasn't helped although it's improved my energy levels a bit. Will continue to do this as long as I am able. Only slept around 3 hours last night so please excuse any errors or if I failed to mention anything important. Thanks very much for reading my rant and any feedback or insight would be appreciated.
Again, I don't believe this to be an addiction issue, I've never abused my medication and have talked to numerous doctors who have concurred.
Fast forward to today, I tried to go off benzos cold turkey in 2010 and had a horrible time, reinstated after 60 days of hell. I am currently taking .5 mg of Xanax for panic attacks (twice daily) and 1 mg of Klonopin for insomnia along with Remeron and Trazodone. Over the past 20-30 days, after a year (or so) of sleeping reasonably well, once again I have developed terrible insomnia. I will admit that I've doubled my dose of Klonopin on occasion to induce sleep, it hasn't work. I've added Xanax at bedtime per my doctors approval, it hasn't worked. I've also tried 100 mg of Trazodone, although it's helped a little, it often causes horrible sleep paralysis. More often than not, it takes a good 45-90 minutes to fall asleep and lately, I've been waking up after about 2 hours of sleep and been getting between 4-6 hours a night, not nearly enough for me. I refuse to take any more than 2 mg of either Klonopin or Xanax and if I combine the two, it's 1 mg of Klonopin and .5 mg of Xanax. I do not drink, smoke, take pain medication or use any other drugs including marijuana.
When I went through benzo withdrawal in 2010, I literally went 45 days sleeping less than 30 minutes a night and became very ill, also worried at that time I had developed fatal insomnia or some other horrific neurological condition. During that period, I was on a myriad of antidepressant medications to induce sleep, none of them worked, in hindsight, I think they made it worse. Seems like benzos are the only thing that's ever worked and now they're failing me, so I'm frightened. I had a sleep study in early 2011 that was normal, no sleep apnea. Had a brain MRI for numbness and tingling a couple weeks ago that was normal, not sure if that matters or not but I figured I would mention this. Seems like only a few diseases have insomnia as a symptom and these conditions are relatively unpleasant to consider. I realize that there are diseases that cause insomnia like liver disease or chronic pain but I do not have these issues. The muscle pain I have is due to exertion and goes away when I lie down.
May seem like this is a dependency issue and should be addressed somewhere else but my main problem is sleep, if I don't sleep I get very ill and can't function. Over the course of my 12+ years of insomnia, I've tried most of the antidepressants that make you drowsy. Ambien was not very effective and Restoril was useless to me. I could take 10 mg of Ambien tonight and stay up and watch television, it simply doesn't work.
Does anyone else here have treatment resistant insomnia? Seems like a high dose of benzos or Ambien will knock anyone out, can't help but think that I may be suffering from a serious condition. Since I started having insomnia back in 2000, I've also developed some strange (undiagnosed) neurological problems like muscle twitching, weakness/fatigue, muscle pain and lightheadedness (not vertigo)
Haven't come across too many people who've been sympathetic, including doctors. I started exercising again a couple weeks ago, walking about 2 miles a day at a brisk pace which is a lot for me, hasn't helped although it's improved my energy levels a bit. Will continue to do this as long as I am able. Only slept around 3 hours last night so please excuse any errors or if I failed to mention anything important. Thanks very much for reading my rant and any feedback or insight would be appreciated.
Again, I don't believe this to be an addiction issue, I've never abused my medication and have talked to numerous doctors who have concurred.
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Thanks and best wishes to all of you :))
I do have Sleep Apnea, very severe...I never get REM sleep, haven't for over 5 years, been to sleep studies so many times, Doctors can find no reason for my lifelong battle with insomnia...They finally decided it had to be chronic anxiety...
I think you are on the right track with exercising. That used to help me alot but have advanced stage COPD and don't have the breath to walk more then 200 yards...So I do my very best to try and stay positive and relax, which, as you know, is very hard to do and can be frustrating...I wouldn't count out getting further testing done. Have you tried the relaxing CD's, like Ocean waves??? Those sometimes help me...
here's to hoping we all get better sleep...
My take is that sleeping pills likely are only treating the symptom (insomnia), and not the true underlying causes for it. And may be perpetuating the problem by leaving the true causes unaddressed.
Very important for you to try to identify the true underlying root causes for your sleeping difficulties, and considering your medical history, you may need to see a medical doctor who specializes in sleep to do this.
Or, since you're from Minnesota, you might check out the Mayo Clinic's sleep program, one of the world's best.
Once you've accurately assessed the reasons for your insomnia, you are then in a much better position to do something constructive about them, and importantly, begin to release some of the stress and anxiety you likely associate with the idea of sleep.
For many of us, that stress is the biggest underlying cause for our sleeping problems. Good news is that you can definitely manage that stress and anxiety, and then your sleep stands to improve naturally.
Good luck to you.
Adriasm, you sound very intelligent but can I ask, why did you ask me if I was afraid to die? I think many people are and yes, I do have that fear. Like I said, you're very smart. Actually, after being on benzos for 12+ years, only a slow taper is an option. I've considered that and may very well try.
Blueeyed, how long have you been on the klonopin, if you don't mind my asking? Do you ever take it during the day, or just at night? It has a long half-life so I don't take it during the day.
Sleeptria... With my insurance, I might have a difficult time getting into the Mayo Clinic. I actually tried to be seen there when I had better insurance for other health issues but they turned me away, seems they don't like dealing with CFS or Fibro. I'm sure stress plays a huge role for me but sometimes, even when I'm super stressed I sleep well and when I'm relaxed, I can't sleep at all.
Incidentally, I slept very well last night but I went to bed super early, I can't always afford to do this time-wise.
If you want to go a more natural way you might want to try melatonin...I have heard from some of my friends that it really works...however when I tried it...it had no effect on me at all.
Just some background on me, I have had anxiety/depression that hit in 1993...and has not left me since. I've had better days and I've had worse days....but all in all...however the better days are getting to be more frequent..
Have you tried hypnosis for sleep. If you have a smartphone or an iPhone, there are hypnosis programs that help and as of lately I have found it helping more and more. Also have you tried wearing a mask to sleep?? It can help block out any bit of light that might be keeping you awake at night. You might also want to try earplugs if you find noise to be a problem hampering your sleep.
I hope something I have suggested will help. Keep in touch...and let us know how you are doing with this problem.
Have not tried hypnosis or relaxation tapes. I tend to be noise and light sensitive and only white noise helps me sleep. I am so sensitive to elements that I usually wear earplugs, turn a loud fan on and wear an eye mask. Trust me, as a single guy it scares some women away lol
As I approach the latter part of middle age, I'm fearing this problem will get worse. Really started exercising this week and it's helped. I slept close to 7 hours last night. First back to back 7+ hour nights I've had in 3 years.