Hypermobile Syndrome Support Group
Hypermobile syndrome is characterized by the ability to move a joint beyond normal range. People with hypermobility syndrome may develop other conditions caused by their lax connective tissues. These conditions include Gastroesophageal Reflux Disease (GERD), Irritable Bowel Syndrome (IBS), varicose veins, flat feet, scoliosis, sprains, tendonitis, and bursitis.
I was diagnosed in April with BJHS and autonomic dysreflexia along with shoulder impingement and tendonitis. I have worked with pain and symptoms for 28 yrs. Since Jan. I have been off work. My rheumatologist prescribed neurontin and keppra which make me feel drunk. I'm dealing with alot of pain and limited mobility in my arms, neck and hips. Im trying stretches and have been in my pool to try and improved my pain with no sucess. Sleeping is problem, an hour or two at the time. I'm only 47 and have high hopes to get better. I will get injections and feel better for a bit just to get very disappointed with more pain and reoccurring limited mobility. I feel like my rheumatologist has given up on me getting better. I am seeking a second opinion next month. Any suggestions would be greatly appreciated.
You probably have the right idea, in trying stretches and the pool. I suggest some physical therapist (physiotherapist) visits to discuss that and make sure your workout exercises are right for you. Maybe massage there would help. I think you'll make gradual progress once the correct workout is established.