Hypermobile Syndrome Support Group
Hypermobile syndrome is characterized by the ability to move a joint beyond normal range. People with hypermobility syndrome may develop other conditions caused by their lax connective tissues. These conditions include Gastroesophageal Reflux Disease (GERD), Irritable Bowel Syndrome (IBS), varicose veins, flat feet, scoliosis, sprains, tendonitis, and bursitis.
i'm new to this so i thought i would share my story with everyone. My name is Emma and when i was about 5 to 6 years old i was diagnosed with irritable bowel syndrome or IBS. Certain foods would trigger it and storms also triggered it. About 1 year ago my Hypermobility pain started getting very bad. I was constantly at the doctor trying to figure out what was wrong with me, lots of scans and blood tests later I finally went to a doctor who could figure it out. I have always had flat feet as well, so he had given me special inserts that have helped dramaticly with my pain in my knees and hips. Lately i have been having pain and my friends don't understand how painful and difficult it is to have hypermobility. i thought it was time to finally start talking to people who are going though the same thing i am. i wanted to come here and ask if anyone had any tips for pain management that isn't pills or drugs?? Thanks for the help!
Do you have a good Rheumatologist? I believe that having a doc that 'hears' you is the most important thing!!!
Thank you for sharing!! Praying you find some relief soon! Take care!
I don't have as much pain as you but I might be able to help on the IBS front! I myself have had diagnosed IBS for 5-6 years and I have been taking 10 MG of amitriptyline for it. It was originally used as an antidepressant in a 70 mg dosage but was discontinued after failing to increase peoples mood and having too many side effects (hence why I take a 10 mg dosage, enough to work but not enough to experience unwanted side effects). However, a side effect of this that was found to be that it helps calm/numb the nerves in the stomach leading to fewer IBS outbreaks. It changed my life literally overnight, from having episodes 5 times a day it went to once a day and now i havent had an episode in 4 months. My IBS went from being triggered by anxiety and food to being just anxiety to not being triggered at all. You will need to speak to your GP about whether or not this will work for you as all I know is that it works for me but it may be worth a conversation? Good luck hon and message me if you need anything x