Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
Gastrointestinal System
Hemochromatosis Support Group

-
My Hematologist is presssuring me to start an oral chelating agent agent with pages ofSide effects, some of them fatal.... READ MORE
-
Hey all, new to group. Nice to meet you all. Recently (Oct 21) diagnosed, Ferritin at 1600. Diagnosis followed 3... READ MORE
-
My head is spining trying to figure out a recent diagnosis of Hereditary Compound heterozygous C282Y/H63D with ferritin... READ MORE
-
Last blood donation they didn't have any bags or bottles so they used test tubes with an I-V needle. Didn't like it... READ MORE
-
Hi AllI was diagnosed in 2014 with HH and had my family tested, it turned out that my daughter also has HH, and my wife... READ MORE
-
Hello. I was diagnosed a couple days before Christmas. I had been feeling exceedingly tired. I have always been very... READ MORE
-
Hi there everyoneI was diagnosed with HH about 2.5yrs ago. I have been very lucky that my iron levels have been pretty... READ MORE
-
Hi I am awaiting a gene test to see if I have Hematomacrosis I’m the uk and my iron levels are at 47 I don’t eat a... READ MORE
-
I was doing weekly phlebotomys for about 5 month and finally got to 50 on ferriten. never had any side effects, felt... READ MORE
-
53 yrs old. Diagnosed in spring of 2021. Ferritin was about 4300! I'm now at 1100 after ~15 phlebotomies.I am a small... READ MORE
-
Hi, I joined to ask about my mom. She was diagnosed with this about one year ago. She is 83. Her iron was 900 when she... READ MORE
-
It has been several years since I visited the site. I just want to share some information and perhaps a couple of... READ MORE
-
Hello;I just joined the group today. In fact this is the first time I have joined or tried to join a group. I was... READ MORE
-
Hi, I haven't got hereditary Hemachromatosis, but I hav e been diagnosed with a Ferretin level of 850. Please... READ MORE
-
Hey everyone - im a healthy 42 yr old man, 6ft, 177lbs. Active, non-smoker, always have been a relatively healthy... READ MORE
