Heart Failure Support Group
Heart failure is a condition that can result from any structural or functional cardiac disorder that impairs the ability of the heart to fill with or pump a sufficient amount of blood throughout the body. It is often undiagnosed due to a lack of a universally agreed definition and difficulties in diagnosis, particularly when the condition is considered "mild."
RoboPop
Dear Family, and Friends ~
I wanted to take this opportunity to discuss something that has been bothering me, and I felt needed to be addressed at length, so we may come to an understanding. My condition, specifically congestive heart failure (CHF).
For some reason, society equates looking good to physical well being. Even medical doctors, who know better slip into this trap, and equate appearance with well being. Unfortunately CHF seems to target the worlds beautiful people. While we may look deceptively good, causing others to believe all is well, the fact is we struggle daily with survival. Every day I wake up is a challenge.
Congestive Heart failure, or simply heart failure, is the inability of the heart muscle to pump properly and supply sufficient blood flow to meet the body's needs. Heart failure can cause a large variety of symptoms such as severe loss of energy, chest pain, shortness of breath, coughing, dizziness, confusion, swelling in areas such as the ankles and stomach, and exercise intolerance. This occurs most commonly when the body becomes congested with fluid.
Any physical exertion requires an increase in oxygen supply to organs and tissue to compensate and provide the energy necessary for those activities. Unfortunately with this disease, I struggle for adequate oxygen even with minimal exertion, and often struggle even while resting. What I once did with little thought or effort is now a monumental undertaking for me because of this condition. Physical activity frequently results in my being out of commission for several days afterward.
Shortness of Breath for me isnt the usual sensation one gets after physical exertion, but for me it is a sensation of drowning because fluid builds up. My entire body, organs, tissues, brain all scream for the desperately needed oxygen enriched blood that is being denied to it.
Congestive Heart Failure is debilitating, and gets progressively worse with time. Many of its victims die from this condition. Each day I awake, I live with the knowledge and fear that today may be the day. When I fight this battle and face the worst symptoms, I wonder is this it? But I go on, and try to make the most of the hand Ive been dealt.
Im not looking for sympathy, or to be treated like a baby, to be held and mothered constantly. I just want recognition that, while I naturally look really healthy, I am not. I have some limitations to what I can do physically. It impacts us all, but perhaps by working together, we can all make the most of what I can do, learn to adjust accordingly, and enjoy a modified life to its fullest. Please dont minimize my affliction. It is a serious, chronic condition from which I will not recover.
I wanted to take this opportunity to discuss something that has been bothering me, and I felt needed to be addressed at length, so we may come to an understanding. My condition, specifically congestive heart failure (CHF).
For some reason, society equates looking good to physical well being. Even medical doctors, who know better slip into this trap, and equate appearance with well being. Unfortunately CHF seems to target the worlds beautiful people. While we may look deceptively good, causing others to believe all is well, the fact is we struggle daily with survival. Every day I wake up is a challenge.
Congestive Heart failure, or simply heart failure, is the inability of the heart muscle to pump properly and supply sufficient blood flow to meet the body's needs. Heart failure can cause a large variety of symptoms such as severe loss of energy, chest pain, shortness of breath, coughing, dizziness, confusion, swelling in areas such as the ankles and stomach, and exercise intolerance. This occurs most commonly when the body becomes congested with fluid.
Any physical exertion requires an increase in oxygen supply to organs and tissue to compensate and provide the energy necessary for those activities. Unfortunately with this disease, I struggle for adequate oxygen even with minimal exertion, and often struggle even while resting. What I once did with little thought or effort is now a monumental undertaking for me because of this condition. Physical activity frequently results in my being out of commission for several days afterward.
Shortness of Breath for me isnt the usual sensation one gets after physical exertion, but for me it is a sensation of drowning because fluid builds up. My entire body, organs, tissues, brain all scream for the desperately needed oxygen enriched blood that is being denied to it.
Congestive Heart Failure is debilitating, and gets progressively worse with time. Many of its victims die from this condition. Each day I awake, I live with the knowledge and fear that today may be the day. When I fight this battle and face the worst symptoms, I wonder is this it? But I go on, and try to make the most of the hand Ive been dealt.
Im not looking for sympathy, or to be treated like a baby, to be held and mothered constantly. I just want recognition that, while I naturally look really healthy, I am not. I have some limitations to what I can do physically. It impacts us all, but perhaps by working together, we can all make the most of what I can do, learn to adjust accordingly, and enjoy a modified life to its fullest. Please dont minimize my affliction. It is a serious, chronic condition from which I will not recover.
Posts You May Be Interested In
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
So very well put,alas as with all things in this life its really hard for those that havent been there or living through it ,to really feel what youre going through . May tomorrow be a good day my freind.
So, from a 43 year old guy diagnosed with idiopathic cardiomyopathy and chf in '08 who experiences everything you do, I thank you.
THANKS so much for putting it so poignantly, and, making me realize even more, that I am NOT alone!!!!!
Blessings to you!
Kim
PS I'm gonna print this out for my MOTHER, as she keeps asking me what's WRONG with me!!!!! (And, I tell her, SOS---same thing as ALWAYS, in a nice way!)
He was very nearly dead by the time he was correctly diagnosed 6 months after the onset of his symptoms. Thanks to excellent treatment at the university's Heart Failure unit, he is recovering very well now, though.
I just hope DOCTORS (Primary Care Physicians) read this, if they have never seen other cases of CHF in a before/after sort of way. The first cardiologist my husband saw wondered why it took them so long to refer him when his symptoms were so typical--and, yet, he got so many other referrals without heart problems at all.
All my friends got astonished when this August I told them that my cardiologist is already speaking about the possibility of a transplant in the near future ....
No one could image it .... despite the fact that I always repeat that they see me in the good days because in the bad ones, I am not able to move....
Jesus
on the outside I look FINE !
well ok , i'm over weight , but beautiful .
My CHF is killing me day by day ...
i'm one year and a few months with the defibrillator in me and my ef is only 18 to 22 % .
it was at 15% July last year.
I'm 39 years old!
All from an " UNKNOWN VIRUS! "
Sometimes I feel like slapping a sign on my forehead " DYING " !
No one really gives a flying fuck , ya know the people who don't know u.
They just think , wow, this healthy person is using up my ride along cart or parking in a handicap spot.
They stare , they comment ...
I say to ALL that FUCK OFF!
So yeah , I all to well understand ur post and here's to ya!
I hope that was nice? hehehe
Always Silky ~
Try not to be afraid, just be happy with what and who you have daily.
It is frightening ,VERY!
I just want to have QUALITY time left with my hubby and son!
what has really helped me is Sylvia Browne , James Van Praagh, Long island medium,
Cause one day I KNOW , there will be a afterlife, it gives me something to believe in .
Please feel free to use my post to help explain your condition to others.
ROBO
I love my non-profit job but working 4 hours straight zaps me for days. Things have definitely improved but I've still lost so much! 44 with CHF. My EF is 13 %. Diagnosed 1/12 ICD 4/12. I try to be thankful for the improvements but I'm still so sad from the losses.
Thank you for sharing