We all know how you feel,I am so sorry you must go through all of this crap.I know when I get to my lowest point and even before I get there I pray it helps me alot.

When you are at the lowest place just try to remember all the Blessings you do have in your life,there is always Blessings even through the hard times.

I will keep you in my prayers :)

Don't look at it as your life is over,look at it as you just have to pace yourself and don't feel guilty about having to do this.

Also TAKE ONE DAY AT A TIME :) God Bless You

One more thing, awful as it sometimes can be, and it can be very awful, In my long experience with Fibro, the one thing that consistantly works, on any of it, is to "worry" it. grind on the site that hurts the most, til it brings tears to you eyes, makes you sweat all over, makes you involintarily scream, worry it, stretch it, put in awkard positions, get a "over the door " traction device (at the drug store) get heating pads, a cervical collar (like the rear end accident people) get an electric blanket, get velcro closing Ice pacs (walmart). Get your Doc to prescribe low dose (15 mg ) ex-ms for when all else fails,(1 or 2 every 12 hours) get senacot for the constipation take one each time you take a ex-ms, keep enamas around, get something for the anxiety and depression, I use a selective seraton reuptake inhibitor (ssri) Cymbalta.

It took me 3/4 of a lifetime to put that formula togeather, with it I can go out all day, work, sleep, enjoy a normal (well almost ) life. the collective effect of all those modalities lets me put Fibro sufficently in the background until I come home to rest, then I need everything and every trick, fibro hits like a ton of bricks and the fight is on. each year I've gotten more tricky, I'm giving the (almost all ) benefit so you won't have to go through what I have, hope you can benefit.

Mary, my thoughts and prayers to you. Your post made me cry because I am in the same place right now. I sometimes want to punch and hit and just scream with the unfairness and anger over this life altering condition. Just hold on and vent and cry and whatever else you need to do to get through. Are you taking anything for pain? For myself I have found that when the pain is controlled some my emotions are more even. For me pain control is what is saving my sanity. Thankfully I have a great doctor who has been working with me tirelessly trying to find meds that work. We have only had some mild success but I feel so much better just knowing someone is trying to help and my hope that someday there will be some relief. I have tried and am taking "management" meds like neurontin but without the pain meds i would have lost it completely. I promise if you can get the pain under control a bit you will be able to cope alot better. There is no reason for us to suffer this pain if there is anything that can reduce it. Please accept a hug from me and a shoulder to cry on. Love and prayers to you.

I just wanted to thank all of my DS angels! You are all so wonderful, I have been crying while reading all the wonderful supportive replies I received, and I really needed them. Today emotionally I had a better day, not great, but better. Feet are still the same, but you are right, I just went into my boys rooms and they are peacefully sleeping, gave them a kiss, and they are worth anything I have to go through.. to be here for them and watch them grow up. I know I will find the inner strength, and until I do, I will continue to concentrate on my boys and also try some of the great advice and tips you all shared.
God Bless You All!
Many hugs,
Masry

I have been right where you are but when you have that good bond with your children, no illness can touch that. The bond is so much stronger than the illness will ever be. You sound like a very good mom to be concerned about them and your husband. This illness can weigh heavy on our spirits and with the depression that can sometimes coexist it can be easy to sord of lose interest in the things that used to make you happy. Crying alot, feeling sad, etc can also come from a chemical imbalance and sometimes medication can really help. Not to sound like a prozac commercial, but really it can pull you out of it and look at things from rose colored glasses so to speak. I hope you feel better.

Hi Mary, I am new to this FM and to this site but it sure does help. I have found that prayer and a positive outlook help when the pain is real bad. I started taking Cymbolta for the pain about 2 months ago and it sure did help. It also helped with my chronic anxiety although I still need to take Xanax when that gets bad. I was trying in the beginning to beat this FM without meds but I quickly found that to be impossible. The pain is too much and the moods and anxiety are as debilitating as the FM. Actually the more I read and research the more I realize that all of these symptoms, physical and emotional are all part of FM.
So, be kind to your self! Have a good cry and then go to your doctor and ask what you can take to help you. There are many meds out there and we are all different but you will know which ones help you. I am 57 years old and 4 of my 5 kids are older but I do have a 12 year old so I know what it is like to not feel well enough to do things with her.
Good luck and let us hear how you make out. Like I said, try to be positive and get to a doctor who deals with this illness and get some help from him/her.
Love and gentle hugs!

That is me everyday except i havnt had a good day in months. I have small kiddies too and i dont know how i do it. I take it one minute at a time and try to stay with a smile even if i have to dig far for it. Meditation helps me along with tai-chi. Meds make me horribly sick and my friends and family are long gone. Made new ones and im much happier now. Chanting nam-myoho-renge-kyo over and over helps. cant remember what it means but im glad i got the words right. When i got nothing else even prayer to lift me up from agonizing pain i chant. and in less then five minutes i can compose myself again. Its weird but its all that works for me. Thank you for sharing. I hope you feel better soon.

Mary
You can see that many of us have been in a similar place. Know that you are not alone. I echo what many have shared on here. The only thing I could add is when I feel that way, I want to learn everything there is to learn about my condition.There are several great books on what you have been diagnosed with. They are pretty cheap on Amazon.com. Let me know if you want names from some of the ones I found helpful.
Also about the medication piece. You should of course check with your doctor, but there are medications that really help one thing but make other things worse. One example is prendisone (steroids) They really help things like Lupus but they make Fibro worse. They also have been know to make people weepy and anxious. Hope that helps.

I'm right here with you...a 'sister in sorrow' because of all of this. I can't understand it either and I struggle with the why's....Sometimes I ask miyself if I've done something horribly wrong to deserve this and then I remind myself I'm only human. We have to take it one day at a time. I've had Fibro for well over 11yrs (when I was diagnosed). For the longest time I did nothing about it cos Drs laughed when I said I had it. Now it's taken more seriously.THANK GOD. My Dr and I are now trying to get me to a place where I can handle the pain-I hope I get there. So far the meds are not working. I'm taking Lyrica,Mobic and Ultram-Now she's adding Cymbalta. I'm crossing my fingers because I feel your pain. I think about my gardening days and I cry too...I'm only 41 and I feel 81:( My family is riddled with autoimmune. I have four boys and a husband,work and house duties too...but I keep fighting and I keep praying that God's will will be done. I hope his will is for us to beat this! Much love to you

I'm also taking 900mg of magnesium. It hasn't cured me,but it's helped me in a lot of ways. It helps things 'flow'. Look it up and read all the good things about it:)

Hi Mary,

I can remember sitting and sobbing the pain was so bad. After a while it just went away for a few years. I was taking Feverfew and it helped tremendously. A year ago, I had an episode where I passed out and drove my car off the road. The cardiologist took me off the Amitriptyline and all sorts of problems came crashing back onto me. I put my self back on the Amitriptyline and am slowly getting better. My legs from my knees down feel like toothaches. Sometimes my butt hurts so bad I put on Lydoderm patches on it.

A few weeks ago I met a lady who told me about Boswellia (400 mg capsules) take 2 caps twice a day; tart cherry extract. So I have been taking these for the last couple of weeks and I am actually feeling a little bit less achy. My stamina is still low, but I can move and have less ache in my legs and feet. Only time will tell if these will put me in remission again, but I will keep taking these until I am convinced one way or the other.

I hope you can find some comfort in the words you find in these posts. I do. Here is a BIG HUG (0) for you. Get well soon.

1someoneelse

Mary,

I am there today too. I went to bed crying and this morning and again reading your post. I know I have gotten through it in the past and I will again, just as you will. I don't have small children but i still feel like I have taken my 17 year old's life away as mine the last 5 years. I am also having extreme financial difficulties and that doesn't help. As you see there are so many others. I want everyone to make fibrymyalgia awareness day a day to teach our family, our friends, our doctors and strangers everything we go through. We will get a cure this way. The doctors need to do something to help us and make our lives and those we live with better. They can see cancer but we need to make them see fibromyalgia.

Mary, all of these replies are advice through trial. I have have this terrible disease for 25+ years and I can tell you things that work for me. Massage. Especially where it hurts the most. You can get heating creams that you can work into your feet, ankles and legs that really help. Heat. it helps fibro. There are a lot of people that will mention that. I can't use ice much as it traumatizes me but......it might really help you. And medication. I take a combination of Neurontin, muscle relaxer (Tizanidine), Cymbalta and Klonopan. Plus I have other issues that require pain relief. The best thing you can do is MOVE. It hurts so bad some times, but if you don't keep yourself moving (like you could stop with 2 kids), it will cripple you. And the pain of fibro will come and go in your life. Just make the most of every prescious minute!

I was there last week. I feel for you. Remember, one day at a time. One moment at a time on bad days.

I know what you are going through and it is such a hopeless, lonely feeling. A few weeks ago, I hurt so bad that my clothes hurt. I laid in bed and cried on my dog's shoulder. My kids had to pretty much fend for themselves for a while. What got me through was knowing that the fibro monster comes and goes. And sometimes when he comes I beat him. Sometimes I don't... but it does go. Of course, talk to your doc about gettting some good pain meds for those days. I take vicodin. Don't be afraid to take meds. If you live in a state where med marijuana is legal... get some!! A jacuzzi tub is great pain killer if you can get one or even go get a hotel room for a couple nights that has one. Not a hot tub w chlorine, but a bath tub with jets. I hope you feel better soon, and remember it goes as quickly as it comes.