Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi, I'm thankful for groups like this because they have helped me understand how others live with their illness and help each other figure things out. Back in 2015 I had blood test results come back positive for Limited Scleroderma and have gone down hill the past 2 years. I'm a bit overwhelmed with all of the things I have been diagnosed with. MTHFR gene mutation, Mixed Connective Tissue Disease, fibromyalgia, Hashimoto's and prediabetic so I started learning about the MTHFR first then the MCTD. Now I am on to the Fibromyalgia.
What were the first symptoms you new were Fibromyalgia?
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So there's a Bigfoot festival going on soon and Hubby is soooo enthused.I've spent so much of my life outdoors. I'm 99% sure their whoops and thumps and such are probably people up to no good tryihng to scare other folisk outta the woods without getting in trouble.Why do I say that?There's moonshiners in my DNA. And people who've lived in the forests since before white folks. If something was out...
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Fun facts to up your day:The Big Bang wasn't IN space... it was OF space. How does that happen? Well, now you know why I'm NOT a physicist. Cuz I dunno. It just happened. Thena gain a new hypothesis is that our "black energy/matter" is actually waste dumped in our universe from somewhere else's black holes. How and all that? Don't ask. You start getting all "The Matrix" and muttering...
Fibromyalgia is a disorder of the central nervous system. In some people it can be triggered by high levels of stress, childbirth, an accident, or emotional trauma. There is also a genetic component that is still being researched. Fibromyalgia does run in some families. The mechanism that causes it is not understood.
In my case, it was a combination of high levels of stress and a disc fai!ing in my lower back. I believe that my Dad may have had it but was never diagnosed. Our health histories are very similar.
I knew what I had before I saw the rheumatologist because my best friend was diagnosed two years earlier.
I'd like to suggest that you purchase the book "Fibromyalgia for Dummies.". It is available on Amazon. It will give you a comprehensive overview of this complex illness. And, a myriad of ways to try and manage it.
i hope that my comments are helpful to you. Take care.
Susan
It took me five years to get my doctor to look at it seriously. Because I live with chronic pain and have arthritis and rsd and chronic fatigue. I was having muscle and joint pain all the time. In my breasts , legs, thighs everywhere. my back aches 24/7 I take a lot of medications.
I was given Lyrica it worked great took away pain but after a month I gained 50 lb. and got severely depressed and then suicidal. I found out through my pharmacist that was all side effects of Lyrica so have gone off of it. I haven't found anything that works completely. My doctor gave me toradol it helped a bit. finally I went to the hospital and they injected me with liquid toradol in the pain spot which was at top of breast going under my arm. I have been checked for breast cancer because I have had it previously. the injection took away my pain. but how do I get my doctor to let me do this myself. I used to be a nurse so I know how to do this. but I wonder what all are you doing to keep this under control. good luck gentle hugs casey