Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
When I'm not sick, we're ok.
When I am sick, he's the worst. I am an after thought, like I am making this up.
Things were looking up for a while because I was on Lyrica and it was finally kicking in and I was functioning 80% of the time. But after 5 months, the weight gain kicked in and some other issues, I HAD to discontinue it. And the pain is worse now than it was before. Whoever said Fibro isn't a progressive syndrome is crazy. I'm trying another med, but it takes time.
So guess what's on the rocks again? Everything is about him. HE needs time away to relax. HE needs to rest. HE worked so hard. HE is so sore! The only thing around the house he does is cook dinner.
I mow the yard. Laundry. Dishes.
We have a three year old (and I believe the pregnancy is what brought this fibro on.)
Now, I have a dx of early RA and take methotrexate weekly which I'm not sure I believe just yet - and it totally wipes me out for a day or two after I take it. So what does he usually do when I'm wiped out? Leave the house for several hours for a 'meeting' with his beer drinking biker buddies and leaves me with our three year old.
I'm about ready to give up. I mean, what's worse, hoping someone will be there for you and them disappointing you, or KNOWING there is no one there for you? It's not the despair that gets you, it's the hope.
All this makes me feel worse. The stress. Knowing I am now a crappy wife and mother. I've tried talking to him. I've tried to make him understand. I've told him how joking about my pain makes me feel. He's made comments about how he probably has "that fibro thing too!!! haha"
"In sickness and health" seems to be a joke.
When I am sick, he's the worst. I am an after thought, like I am making this up.
Things were looking up for a while because I was on Lyrica and it was finally kicking in and I was functioning 80% of the time. But after 5 months, the weight gain kicked in and some other issues, I HAD to discontinue it. And the pain is worse now than it was before. Whoever said Fibro isn't a progressive syndrome is crazy. I'm trying another med, but it takes time.
So guess what's on the rocks again? Everything is about him. HE needs time away to relax. HE needs to rest. HE worked so hard. HE is so sore! The only thing around the house he does is cook dinner.
I mow the yard. Laundry. Dishes.
We have a three year old (and I believe the pregnancy is what brought this fibro on.)
Now, I have a dx of early RA and take methotrexate weekly which I'm not sure I believe just yet - and it totally wipes me out for a day or two after I take it. So what does he usually do when I'm wiped out? Leave the house for several hours for a 'meeting' with his beer drinking biker buddies and leaves me with our three year old.
I'm about ready to give up. I mean, what's worse, hoping someone will be there for you and them disappointing you, or KNOWING there is no one there for you? It's not the despair that gets you, it's the hope.
All this makes me feel worse. The stress. Knowing I am now a crappy wife and mother. I've tried talking to him. I've tried to make him understand. I've told him how joking about my pain makes me feel. He's made comments about how he probably has "that fibro thing too!!! haha"
"In sickness and health" seems to be a joke.
I hope that your Husband continues to communicate with you.
Please have hom go with you to your next Doctor's appointment and also have him read about Fibromyalgia and try to educate himself.
There is a Book called "Fibromyalgia For Dummies" and t is a basic Book that explains a lot and could be very helful for the bothe of you. Here is the LInk for the Book on Amazon:
http://www.amazon.com/s/?ie=UTF8&keywords=fibromyalgia+for+dummies&tag=googhydr-20&index=stripbooks&hvadid=19722890541&hvpos=1t2&hvexid=&hvnetw=g&hvrand=15541827300425567690&hvpone=&hvptwo=&hvqmt=e&hvdev=c&ref=pd_sl_7vw9zr6s6c_e
I hope he continues to cooperate with you and helps you as much as possiblt too around the house and that he mows the lawn. Let me know ho things go and you can always send me a mesage.
Just remember you should always be treated with respect.
Keep talking to each other. Communication is so very important.
I will keep you in my prayers.
Fibromyalgia For Dummies:
http://www.amazon.com/Fibromyalgia-Dummies-Roland-Staud/dp/0470145021/ref=sr_1_1?s=books&ie=UTF8&qid=1405125874&sr=1-1&keywords=fibromyalgia+for+dummies
Sometimes we have to remind ourselves that they didn't sign up for this either. We're not the only ones affected, in some ways it affects everyone we love, and certainly everyone we live with.
As others have said, communication is absolutely the key!