Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi all!
How are you all?
Quick question. I am going back to the rheumatologist next week. I plan to talking to him too. I am a bit nervous. I have been battling daytime sleepiness for years. It never really did concern me. As of the last month, though, I have been falling asleep while doing normal stuff. I was at a restaurant, with my daughter, last week. We were playing words with friends. I was in the middle of thinking about what word to use, and I FELL ASLEEP, holding the phone. In the middle of a loud restaurant.
I AM FREAKING OUT!
This has been happening to me very often in the last month. I don't understand the dizziness, and the sleepiness that is happening to me. It's not my blood sugar; I'm hypoglycemic. It's not my blood pressure, which went up with the spinal shot steroids. I have no idea what's going on. I am sleeping, not great due to pain, but it's no different than usual.
Does anyone experience this falling asleep while doing stuff? It's really freaky. I've actually been having trouble while driving too. I have to open the windows, and sing, and move, or I'm asleep! What gives!?
Thanks in advance guys!
Hilda
How are you all?
Quick question. I am going back to the rheumatologist next week. I plan to talking to him too. I am a bit nervous. I have been battling daytime sleepiness for years. It never really did concern me. As of the last month, though, I have been falling asleep while doing normal stuff. I was at a restaurant, with my daughter, last week. We were playing words with friends. I was in the middle of thinking about what word to use, and I FELL ASLEEP, holding the phone. In the middle of a loud restaurant.
I AM FREAKING OUT!
This has been happening to me very often in the last month. I don't understand the dizziness, and the sleepiness that is happening to me. It's not my blood sugar; I'm hypoglycemic. It's not my blood pressure, which went up with the spinal shot steroids. I have no idea what's going on. I am sleeping, not great due to pain, but it's no different than usual.
Does anyone experience this falling asleep while doing stuff? It's really freaky. I've actually been having trouble while driving too. I have to open the windows, and sing, and move, or I'm asleep! What gives!?
Thanks in advance guys!
Hilda
I get fatigued and eyes get tired but I don't conk out in public or while doing things.
That's sounds like Narcolepsy.
I would hope the physician will be able to help you. Tell him exactly what happens.
Though you may feel you get sleep there maybe something going on perhaps the doc will suggest a sleep study.
I hope you find answers and the help that you need.
Good luck.
I still have terrible fatigue from fibro and chronic low vitamin D, but not the kind that makes you fall asleep at inappropriate times anymore.
I hope your doctor will be able to sort it out. Both are highly treatable if that's what you have going on.
I have significant fatigue issues (although much less since I started synthroid) but I've never fallen asleep in the middle of doing something.
Good luck!
As you blood glucose is fine, pressure is good. I guess I should do the side study, just to find out. If you learn anything else please let me know.
I have the same problem they stopped me from driving , but they tell me it is because of the medication I take and the mixture blends and leaves this as a side effect. funny thing is it just happens out of the blu same for me. I was at supper talking to my husband and my mil and I fell asleep for a moment but they noticed my mil says oh you must not be sleeping.. I actually do not sleep well thanks hope this helps isabee
Thanks for the suggestions. I had this problem before I started the Lyrica. It went away, then again it wasn't this bad, either. I have been getting HORRIBLE sleep the last month or so. I wake up all night long with pain (neck, low back, left hand, and upper back). My pain management is a joke! They won't up my meds, even though I have asked at every appointment since July. So, I am in pain. I have insomnia to begin with. I did start taking B12 about two months ago because the sleepiness was freaking me out. It's extremely nerve wracking! I see the rheumatologist on Monday. I've had to go back to drinking major caffeine to stay awake. We'll see what he says. I did start a new med for blood pressure (in August) but I only take it at night because it makes me sleepy. I considered narcolepsy... but I've never had this problem before (not this pronounced) so I wasn't sure. I do believe a sleep study is probably a good idea. We'll see what he says. He's a doll.. so I know he won't leave me in the lurch. I hope. Thanks so much guys!!!!