Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
After Fibro, I get more help with daily living, people don't expect the world from me, and its made my life easier.
I also have learned to simplify and manage my life which I didn't know anything about before.
I also learned who my true friends are and thats valuable in its own right casue well, you don't need friends who are not there for you when you need them.
I am also thankful that it has brought me and my daughter closer as I am no longer able to work. I can cuddle with her and do school work and go exploring (in our own way) and thats the most beautiful thing...
Sad saps! You have to think about this positively or you'll die a miserable life. Cheer up! I always remind myself it could be worse. I could be healthy, and have lots of money and be the worst person in all the world. I could be so poor i'm literally starving to death. I could have soemthing that WILL for sure kill me.
Fibro has taken away my sleep, but it's never taken away my dreams
It's take away my ability to talk, but never has taken away my voice
It's taken away my abilities but it's never disabled my choices.
Through all of this I've found a simple life. A life I've longed for. It's brought to me riches of the heart and soul vs of fame and fortune.
I now lead a simple and possibly quaint life. But to me, it's honest a great life.
I learned a long time ago that to accept the good that God brings me, then I need to accept the bad. Who am I to sit her and be allowed to pick and choose what life brings me?
I know many here have a variety of levels of faith. For me, Fibro has helped strengthen mine. It's also brought forth a great community of people (DS) whom I learn from each day.
I guess you can say that I've found happiness through weakness. And I now I'm truly blessed to be able to see things in such a way.
This is a good post Blue...thanks!
But I have gained in other ways, last year the depression side completely took me by surprise (at that time I was not diagnosed with fibro). I had a kind of breakdown, decided that I no longer wanted to be with my husband - asked for a divorce and many a time thought everyone, including my two kids, would be so much better off without me. My husband through thick and thin persisted in telling me he was not going to let me go. Even though I would say I don't love you. Finally I was persuaded to see the doctor and given anti-depressants. Then was diagnosed with Fibro a few months later.
I saw everything so differently, I have been married over 20 years and I love my husband more than I ever have. Fibro has brought us closer and there is nothing I want more when feeling down or in pain than to be in his arms and just have that hug that says I love you. So yes my life can be really crap but I have gained so much more. Kinda balances it out.
Answering this isnt hard at all... I had a sllippery fall onto my tailbone which was for me the onset of my fibro Oct. of last year, this fall led me to the local community clinic for the first time (I live in a remote part of Hawaii) after two weeks of intense pain. I was diagnosed then with fibro by a Nurse Practioner who moved here from the mainland and had studied 3 years with top specialists of Fibromyalgia. Long story short Vickie (my nurse/angel) ran me through every possible test-no stone left untuned-to be absolutely sure of the correct diagnoses. Well, during an ultra-sound a large tumor was found on my left ovary which then led to more doctors and utltmately to a total hysterectomy (i had "borderline" ovarion cancer) I don't do borderline - anyway, if I hadn't of fallen bathing my 3 dogs- I never would of had to go to the clinic, I never would of met my good friend and nurse Vickie, who never would of ordered all those tests, Oh, yeah, I'm also the type of person who NEVER goes to doctors unless I'm in pain- so without the fibro I never would of had a clue that a tumor was going inside of me-there were no other symtoms. That's how Fibro has been my blessing. But theres even more blessings than just that, i've found through this past year - thats all the friendships i've made thru my support groups, on-line and off, and through my journey searching for a way out of the pain and total fatique. Theres always hope and help availble if you look for it and blessings all around you.
thanks for asking and allowing me to share.
Aloha, Susan
Ouchy brought up doing old lady stuff. Me too! lol. But I have to do it in little increments. I keep saying slow and steady wins the race.
Khadayii, brought up learning who your real friends are. Yes that one has been hard on me. Expecially when half the time I dont want people around, but darn I still have a couple of great friends. Also you never know who youll end up with aftermath.
Also a couple of people brought up asking for help. OMGosh, this is so hard for me. I too am learning this. its a form of humility as well as allowing people to help, helps them. I often feel like Im a burden, but those who do want to help, it makes them feel better, and man it is so appreciated!!
Thanks so much for adding on here, ladies, I feel pulled up more into happiness instead of sadness!! Bless each and everyone of you with an abundance of love!!! I needed to see these things to remind me again, its really all good. There is a reason for everything. And we are all in stages of where we are at.
I sometimes feel like I am invisible since being in a wheel chair, it has driven me to write a book "The Day that I Became Invisible" It is a story of how corprate america discriminates against the handicapped.
It makes me wonder how many of us are carrying unresolved hurt feelings? After all, it seems fitting that our nerve cells are immediately triggered by our thoughts which become feelings and result in sensations in the body. I never paid much attention to my emotions, and I damn sure wasn't interested in exploring all of the hurt, disappointments, and negative messages that shaped my thinking and the way I viewed reality. But that's exactly what I had to do to feel better!
I really believe that what we suffer is "real", but the evidence is mounting that all disease processes are deeply rooted in the quality of our lives and how well we care for our psycho-emotional selves.
Thanks to fibro, I have learned to choose healing over illness, faith over anxiety and love above despair.
May we all begin a path of complete and total restoration!