Acupuncture I understand. Done that and it was helpful. That being said, not severe has a positive outcome with acupuncture. The rest of it not so much. Especially since people with Fibromyalgia have multiple chemical sensitivities and have to be really careful. I'm so glad that you were able to get that stuff off of your feet. I hope that you are OK.

I agree with you. You can't take chances on stuff that might make you sick/er. Tell them to buzz off.

I'm sorry that happened to you. Thank goodness you are ok. So many times you just wish there was a magic potion and everyone that does not have fibro has the right stuff for you...anyways I'm glad you are ok take care of yourself. I had a bad day also and have had it up to you know where. Again I guess I will tell myself tomorrow is another day but I'm tired of even saying that. Well hugs and prayers out to you

Yes its so tiring hearing people say try this try that, i had someone delete me on facebook all because i wouldn't try what they said (not all illnesses are easy to control!) Been told that if i dont take someones advice that i just want something to whine about and get attention so i totally know what you mean! I had many try pressuring me into doing the oils and i refuse, i have WAY too many allergies including biofreeze which is natural. Sending you lots of hugs and prayers hoping you feel better!

Oh no Ida ! I am glad washing it off helped.

I have decided there are at least 3 types of categories of people in these situations , people that think they are helping you and have good intentions,people who are just trying to sell stuff , and people who are intrusive. I just say I will ask my Dr about that and I usually don't because it is a stupid idea. I have a lot of sensitivities and allergies.

Years back I had to say enough to previous Drs and their constant scripts of this and that as if I am their personal guinea pig or lab rat. More harm than good. My daily meds are for anxiety, depression, and to help sleep deeper and GERD . That is all I am going to take - no more. I have been on them for years, they most of the time help and they are cheap.

Good for you being done with the people pleasing regarding this issue. These decisions are yours to make and without pressure.

Years ago I had a regular massage therapist, she started to try selling me something different with every visit and between that and the massages causing too much pain , I stopped seeing her.

I hope the rest of your night goes well. HUGS

So sorry to hear you are dealing with this negative feedback from people. I experience a lot of the same with everyone from my boss to boyfriends parents and family members suggesting ideas or remedies they have heard of to try. ITS EXHAUSTING. It hard enough just getting through each day with the amount of meds we are already on, but to try new things is really a big deal if it means taking out something your body has been used to for awhile.

I used to do acupuncture for my chronic migraines but quite honestly cannot imagine doing it now that I have fibro. I have sever hypersensitivity along with my symptoms so pressure, temperature, fabric, all of it effects me to the extreme.

But its the power to kindly decline the offer that is the tough part. I have started just using the excuse that I am already trying a new medicine or dosage with my doctor and dont want to mix remedies. Who knows.

Good luck, hope you have a good rest of your night.

I'm so glad you were able to get it off so that you could get relief.

I understand what you're saying because I get it too. I politely say hmmm that's interesting and I don't make any commitment.

It's hard enough getting through the day without this added to it.

Ida, Just say that you have chemical sensitivities and that your doctor's will not allow you try or use anything that they have not vetted first for your safety.

Ida, wow have I been through all the advice givers over the last 25 years! Im so glad you were able to get it off. I try not to let people know many details about me because i dont want to hear the comments...oh they have a friend who had a sister with fibro and fixes it is xyz. Noone understands that we are all so different that they couldnt posdibly know what we need if we dont. Altho i smile,listen while holding my breath to not explode, and disregard totally or may do a quick internet search on it. Ive never seen a dr I respect so dont usually even imply i would put my care in the hands of an MD but sometimes that is the only thing ghat will shut people up...esp when they ask "when are you going to start going to a REAL doctor"..so now i lie. I will do and say anything to protect my sovereign right to my own body and self knowledge. We need to take care of ouselves first..not take care of other peoples feelings and needs...which is probably what made most of us sick in the first place...running our tails off trying to be everything to everybody! Hugs to you.

Oh my gosh, Ida! Poor thing you. Everyone thinks they have all the answers. If they just walked a mile in our shoes, maybe they'd realize we're doing everything we can and leave us alone, right? Gee, if all it took was some tea and essential oils! I have a friend who is trying to sell me a vitamin water she claims is supposed to help fibro. Yeah, right. Like I haven't heard that a dozen times before.

I'm glad you felt better after washing your feet and have decided to take control of your own care. You go! Big hugs!

I am so sorry to hear you had such a bad reaction. My sister is a die-hard oiler. I have tried some for various things with mixed results. Never, I have I tried a concoction for fibro. Mine have been more for headaches and sleep. I am glad you were able to get it off your feet and to feel better.

I agree, it is your body and you shouldn't have to try all of this nonsense to prove to people that somethings just don't help.

Feel better.

Oh goodness Ida! I'm so sorry you had that experience.

I'm glad that you were able to wash it all off. I have only used essential oils once on my skin, and that was more of a perfume (black coconut blend). And while I love perfumes, for me, that is the extent of chemicals I can tolerate. But even then, I'm super picky about them. And of course, they are the most expensive ones, LOL.

Anyways, I'm the girly who burns from most chemicals on my skin. I used to contribute it all to being so fair skinned and freckled....but as I age, I know it has more to do with fibro. Cleaning around here must be done with those big industrial size gloves or my hands swell up on me.

And when I was first diagnosed, I had an aunt who was selling a liquid vitamin blend of stuff and while I did get a little energy from it, it was about $80/bottle which didn't even last a month. But I felt like I was a bad little niece and patient that I didn't keep buying it. Hmm, what were her words? Something like "Well you have to pay for your wellness don't you know"....add in that nice little passive aggressive Minnesotian accent and you'll get the hint.

Oh and when the docs wanted me to do the Toxic cleanse.....bought nearly $300 of probiotics and such and I was doubled over for 3 days. Sheer genius that one, she was from the U of M. And the doc who helped me discover my spinal sensitivities with any kind of epidural injections. I had spinal migraines from.

I'm done being their little test dummy.
I'm so very sorry you had this experience. But I get it. And remember anyone trying to sell this stuff on you that all things have a chemical name. (even water). So you need to guard yourself.

I hope your hubby and his coworkers will understand now that they are dealing with chemical and can seriously injure someone. There is liabilities with that. Not that they think of it as such because gee whiz, it's just natural stuff. No...it's not. If that was the case then we'd be healed by simply rubbing oranges across our butt and onions under our pits.

Heal up....feel better....and know that my heart and thoughts are with you as you recover from this.

Ida, OMG, big prayerful hugs to you! I have few allergies, but essential oils are intensely concentrated and often contain volatile organic chemicals in such doses that people aren't *meant* to use them for good reason.

I do use them, for aroma purposes, and highly diluted, but never anyone else's blends. They mean well, but I don't react well to certain classes of drugs b/c of my epilepsy and the natural plant version of it is still the same chemical compound.... Soooo.... duh, pill or oil or leaf, it's the same thing! Why is that so hard to understand?! Then some people push 'this or that oil, and it's like, "The natives use that for pesticide, why do you want me to use pesticide?!" "Oh but it's ntural!" So is arsenic.... *headdesk* I love natural, but only when it's vetted... Studied...

(I'll note that I like acupuncture for me, but I can't afford it, so haven't don eit in years and I had a good practitioner. Makes the difference, IMO.)

In short: I share your frustration, and hell with 'em all, Ida. You know your body and what works and is safe. They don't. Gentle healing hugs to you.

Thanks to all for your support. I am feeling very depressed about all of it this morning. Like I'm letting everyone down by not getting better from their remedies. After all, "it worked for my friend in NY who couldn't even work because her fibro was so bad, and now she can." I am so damn sick of people telling my husband this crap. He gets his hopes all up, then is disappointed and wondering why this stuff doesn't work for me.

I told him not to come home with anymore newfangled ideas on help for my fibro from any of his co-workers. Ever. It took me 5 hours to feel normal last night. My emotions are all over the place from pi$$ed to depressed, and back again. And to top it all off, our a/c is not working very well and it's been in the 80s for 2 days. I told my hubby it's hot in here this morning, and he said, no it's not. I'm like, really? Can I have a little validation here.

Anyway, thanks, guys.

Oh Ida I am so sorry that you have been going through this. I know that people mean well but they don't understand all that we go through and that our nervous system can be easily overloaded. It sounds like a little support from your hubby would go a long way. I wish you could take the judgement out of it. If they are disappointed that the so called cure doesn't work that is their problem. I think maybe your hubby would do well to read fibro for dummies. Please don't hide from us the things that matter most to you. We are your family and will love and support you even when it seems no one else is. Gentle hugs and love.

Actually, my husband is pretty good. What he wants for me is that I'm all better. He went with me to the appointment where I was diagnosed and he's done everything and spent way too much money to make me better. He's bought me a sauna, a jet tub, numerous juices and vitamins....I told him last night it has to stop. He seemed defeated. He is mr fixit as all my old friends here know. He has an engineers mind and can design or repair anything. He can't fix this. And it's hard on him.