Sounds like FMS. It is very difficult to live with but I choose mostly holistic and natural therapies. Also, due to IBS and chemical sensitivities I have completely changed my eating habits and choices which has helped a great deal. Learning to listen to my body and rest when I need to is a big one for a type A personality but I do my best to find the "balance" required to manage chronic pain/illness. Mostly, what really helps is a peaceful lifestyle (stay away from toxic people), being grateful for each new day regardless of the challenges, and my survival motto: "Never give up!" Wishing you the best day possible and the strength to make it so.

Hello again! Missed seeing you, and not glad you're dxs are racking up like this. Sending you what healing hopes I can, Jon.

Hi Jonsparky, I remember you. I'm sorry you have been back and forth on what is wrong with you. My rheumy finally said lets just say Lupus on top of Fibro until something else shows. So encouraging. I also have Raynaud's, peripheral neuropathy/lots of nerve pain, arthritis everywhere, and lots of muscle pain. I hope you join our check-in and see that you are not alone. This pain can be so frustrating, and we don't get much help from doctors.

Aloha! Welcome back!

I remember you too! Welcome back!

Hi John. I remember you too. Welcome back to the group. I am sending gentle hugs your way.

Deelyn dietary changes have helped me significantly as well. I follow a paleo/anti-candida diet and have removed foods that I am intolerant to. I work with an integrative doctor and follow a natural approach as well.

John do you leave in a medical cannabis state? The medicinal cannabis along with dietary changes, heat therapy, pacing, massage, etc. have been a lifesaver for me.

Hi Jon . I remember you. Welcome back. Sounds like you have been going thru a lot. If I remember correctly, you have tried a lot of treatments including dietary.

If you dont remember my user name , you may remember me by I always had a picture of my dog when she was a puppy as my avi. I cant figure out how to get it back on the new site.

I hope to see you around here more.

Hi everyone, I remember you all! Thanks for the encouragement and ideas on improving my situation... I have gone the special diet route for 15 years now, it has been a tremendous help for me.
I do live in Cannabis California, but the ashram I live in might have a dim view of the stuff, I have heard good things about it. My spinal specialist gave me a Rx for Tramadol, a couple of weeks ago, that seems to be helping take the edge off, I can't take it at night because it makes me hyper instead of drowsy. My Rheumy gave me muscle relaxers, but they do nothing, I guess it is to small of a dose, it certainly doesn't relax any muscles...
I left one disease out of my first post, it is a slow growing cancer, probably from my excessive inflammation, it is called Waldenstrom's Macroglobulemia, the name kind of rolls off the tongue, it is not very serious, it just slowly turns the bone marrow into cancer cells...
Besides the boughts of chronic fatigue and overall pain, I am doing pretty well. I live out in the country on a 100 acre farm, no pressing responsibilities, when I have a sleepless night I can sleep in in the morning (which has been happening a lot)...
Anyway, I feel like I have returned home to all my friends!