Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Concerned for the Future

DevonB
DevonB
My partner and I had a conversation where she said that we are going to have to plan for me eventually going on disability, as the fibro is reducing what I can do, month by month. I even have dreams about not being able to do things.

Is this what it comes to? Do I have to plan on being reduced to someone who cannot contribute to the family? Do I have to change my dreams, and all the hobbies I wanted to engage in? It's so that I can't even do things with my children any more....

I knew it would get worse...but I guess I understood it intellectually, and not emotionally. Now that I do, I"m despondent. I had plans, and dreams, and hopes...and now it's all gone. How do I manage? What do I do?

How have you managed to come to grips with that realization? How do you live your lives?

Devon
deleted_user
deleted_user
surviving the moment gets me through.right now if i think beyond that, i'm bout done in before i start.
survive the moment and takem as they come.that's a shitty little downer message but all i got.PEACE
deleted_user
deleted_user
I don't think I have come to grips with it yet, I have had it pretty bad since 2002 but dealt with it. But now I have gotten it pretty severe in the past yr. And the worst thing I have found is that my 9 yr. old has had to deal with it as much as me, it has changed her life too. And lately for the past week i couldn't figure out why I was starting to hurt so bad again when my meds seemed to have been taming this a little. But my husband figured out what it was. HOLDING my new grandson! My shoulder, neck and arms had been burning so bad that it was making me have almost uncontrollable migrains.

They went to visit the dads family Sat. and as of yesterday I am better.
Now I am having depression because it breaks my heart that my lil fellow can hurt me that bad to hold him.
So there will be something that makes you relize that you can't do anything.
As for contributing to the family income, i don't think I am the one to go there.
I don;t think you are ever mentally prepared.
DevonB
DevonB
Every time I come on and read what people have written I get tears in my eyes. I don't feel all alone. I don't feel like I am as badly off, either. I see what other people achieve, and I feel like I shouldn't be whining. I too must change my attitude, and deal with this.

I've said it before, and I'll probably say it again...Thank you. You've opened my eyes...and you've shared your stories with me...and it means so, so much to me. I can't even begin to articulate how much.

Thank you.