Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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Begging my dr to give me a hysterectomy

deleted_user
deleted_user
I have had 4 lap surgeries in less than a year. Ever time they found either a ovarian cyst/scar tissue or adhesions or Endometriosis. EVERY SINGLE TIME. My doctor that I have now performed 2 of the surgeries and one of them was with the best endo doctor in the state. I have been in pain for almost 2 yrs now and I am ready for change! I am tired of being overweight and lazy-which is caused from stress and the level 10 pain that I am in everyday. My husband and I DO NOT WANT TO HAVE KIDS, no matter what anyone has said we have already decided and that is final. So why won't the doctor give me a hysterectomy? I have explained to him a million times that if he doesn't do the procedure no matter what my husband is going to get a vasectomy. So what is the hold up? Is it because he is afraid he might make the wrong decison? Even though we know exactly where the pain is coming from. Or is it because my husband and I are so young( Me 21 and him 27)? I am going to get a second opinion just for my doctor... it is to make him feel more comfortable I guess. But I know in my heart that this is the right decsion. Does anyone have any advice about maybe asking the right questions or getting it through to the doctor. or does anyone know of any great doctors in Arizona...Phoenix or Tucson? Please I need some advice I am at the end of my rope. You can read my page to give you a little bit more knowledge about what I have been through and what is going on right now. THANK YOU SO MUCH FOR THE ADVICE!!!
deleted_user
deleted_user
I know exactly how you feel!! I am considering the same thing and my Doctor here in Canada told me I was too young. Between us my husband and I have six children so fertility was no longer an issue for me. I certainly have enough children to look after!! My doctor said it was because of the length of time I would have to take the hormone replacement therapy. There are now some health risks with that. I guess that that may be the main concern for you since you don't want to have children. Good luck!
deleted_user
deleted_user
You are young, and yes, that is probably the reason. But I find it utterly REDICULOUS that your doctor will not preform a "life-saving" sugery for you if that is what you want.

Who is he, or any other doctor, to make that decision for you; it is YOUR BODY and YOUR DECISION!

I would suggest finding a specialist that will perform this on you...one that is not worried about their own ass; meaning maybe they won't do it because they are afraid of a future law suit from you.

I don't know of any clinics in your side of the US, but I went to one in Georgia, and the doctors there are truly SPECIALISTS in their field. They actually trian others on this disease. It's been years since I was there and they have changed their name, but I will do some research and get back with you on the name of that clinic.

A trip to Goergia may be financially expensive, but it was worth it for me...it gave me back my life!

Hope this helps and keep in touch!
deleted_user
deleted_user
I know exactly what you are saying and where you are coming from. I am 25 and have a 3 year old son. I said I didn't want anymore children and after being diagnosed with endo I was told I couldn't have anymore. I was completely fine with that and still am. I have begged my doctor in s.c. and here in va to do a hysterectomy but they won't because of my age. I would much rather go through a hysterectomy than go through lupron that i'm getting ready to start and all of the possible side effects with that drug. Good luck and hopefully you'll get the surgery that you want!!!
deleted_user
deleted_user
I'm with you on this one! Even if you change your mind later you could always adopt. I think that people make the assumption that because you're young you are more likely to make an uninformed decision. When it comes to endo I think they should have to experience the pain before they tell you they won't remove the organs that cause it. I wish you lots of luck!!
deleted_user
deleted_user
People will tell you that you are too young and you could change your mind about having children and if you had a hysterectomy then that would end all of your chances to have a child naturally.. Well my cousin had a hysterectomy at 31 or 32 because of endo(which was many years ago) and she adopted a wonderful little girl from Russia several years ago... If a hysterectomy is what you want and you know the side effects from the surgery then I would continue to press my doctor about it and if need be, your insurance company.. I know what you are going through... I'm in the midst of it all right now... Good luck!!
deleted_user
deleted_user
It absolutely amazes me how similar your story is to mine. I was in pain for years and years. It took an emotional toll on me and my family. Not to include the physical toll it took on me. I begged my doctor to perform the hysterectomy. I had already had two children, tubes tied, etc. He just would't do it. I got so fed up that I changed doctors. I started seeing a new doctor, he did a lap, and scheduled me for surgery to remove my uterus a week later. I was so relieved. No more painful, hemorraging perods. Basically what I am trying to say is that you know your body better than anyone. Stick to your guns, if you truly feel that you need a hysterectomy, then you need to find the right doctor that will listen. It took me years of fighting to get it and I tell ya, it was the best thing I ever did, even though I'm going through menopause. The hot flashes are easier to deal with, rather than everyday pain. Good luck!
deleted_user
deleted_user
I am 29 and I have begged to and I don't like to beg for anything but it all boils down to our age and you might just change your mind about having a family. If you do change your mind after all of that there are plenty of children who need loving homes and you can always adopt. If you can find a doc that will do it let me know ok
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