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Health declining and personal relationships failin

anon171
anon171

Along with my severe asthma, I've recently been told my liver and kidney function is now impaired. I'm only 18. 


Some of this may be TMI, but anyway.. recently my kidney situation has gotten so much worse, I am basically urinating predominantly blood, not urine. I've had blood tests, urine tests, ultrasounds, X-rays and CT scans and all of them show nothing which could be the cause. On the CT they have now found free-fluid in my abdomen as well. I've become severely iron deficient which isn't helping.


I've had to go on a temporary break with my partner of 4 years because my health situation has become too much on us and it's something I need to learn to deal with myself before putting it on him. 


And because of all this, I just don't want to try anymore. I'm so close to saying 'stuff this' and simply giving up. No matter how many times I explain to my parents how everything is impacting me, they always say 'well can you imagine how everyone around you feels then?' 


I'm on medication for my depression, Lexapro 20mg a day, but even now I really don't feel a benefit. I don't know what to do. I cannot get employed or start studying because of my situation, I'm good for nothing. I don't know what to do, I don't want to do anything besides curl up and pretend I don't exist.

momewrath
momewrath
I'm so sorry this is happening to you. That is such an unfair thing for you parents to say. You are the one who is going through a tough time right now and you should have people's support. No one should turn your medical issues into their own suffering. Also, you are so young and have so much time to go to school in the future. Fewer people are going to college right out of high school. You can always read or educate yourself on whatever interests you in the meantime which may also help keep your mind off things.
shadowlady
shadowlady
Oh Hon, I'm so extremely sorry for your health problems at such a young age. Of course health impacts the rest of your life.,YOU ARE very important though. Everyone has a purpose. Try to find something you enjoy, that won't negatively affect your health, to pursue and keep your mind occupied.
God bless. Ill keep you in prayer.
Community LeaderWanderingVet
WanderingVet
I don't know what TMI is. I think your top priority is getting a (complete) diagnosis. What is the basis for all these serious signs and symptoms? Once you know that, then an effective treatment plan can begin.

Sorry to hear all this. Keep us posted with the medical developments and progress.
billwfriend
billwfriend
vet TMI means Too Much Information....as if she is telling us stuff we do not want to know but I hope she can get some help....that blood issue is not good and it has a cause...someone needs to find its cause....
anon171
anon171
Thank you everyone for your responses, and yes, TMI does mean 'too much information'.
It is difficult being in a position knowing that this doesn't happen for no reason, but not finding a single cause whatsoever.
I would rather my doctor come back and tell me I have massive kidney stones than be in my current position, because at least that can be fixed.
I just got back more recent blood test results and my iron has dropped even more, and I'm beginning to suffer low blood pressure (I'm averaging around 88 over 42 everyday) so there really is no doubt I'm bleeding from somewhere in my body. I guess it's just extremely frustrating because at the moment, nothing can really be done.
It's more emotionally difficult to acknowledge for me, I would be more accepting of the situation if I was far older, perhaps in my 60's or 70's. But I'm not yet even in my 20's.
I guess a bit of fear with this situation has set in as there is an extensive family history of kidney failure before the age of 25. Not just kidney but also heart failure. And recently in hospital, ECG results confirmed "flattened T-waves" and the rate would fluctuate significantly. I'm not honestly sure what those could mean, but I guess if the doctors don't seem to be stressing, I'm not going to let that get to me.

I want to speak to my doctor about the impact I'm facing emotionally, but I'm already being made to feel that I have "too many issues". Every time I have an appointment, she always says 'you're a goldmine of medical problems', and I know it is intended as an innocent comment, but it makes me feel extremely apprehensive to bring up my mental health, especially considering so many other things about my health are being investigated.
JAAKK
JAAKK
Cinema Modeoff
The Most Beautiful "Amazing Grace" I've ever heard
Amazing Grace was written by a former slave trader John Newton.. Once sailing a ship full of slaves from Africa his ship was hit by a fierce storm... Newton feared ...

youtube.com3 years ago



I hope you will just sit back and listen to this song and relax. I am praying for you!
JAAKK
JAAKK
Cinema Modeoff
The Most Beautiful "Amazing Grace" I've ever heard
Amazing Grace was written by a former slave trader John Newton.. Once sailing a ship full of slaves from Africa his ship was hit by a fierce storm... Newton feared ...

Cinema Modeoff
The Most Beautiful "Amazing Grace" I've ever heard
Amazing Grace was written by a former slave trader John Newton.. Once sailing a ship full of slaves from Africa his ship was hit by a fierce storm... Newton feared ...

youtube.com3 years agoo
JAAKK
JAAKK
Okay so this is not letting me post the right song on here.
Go to the best
sunandbutterflies
sunandbutterflies
Sorry to hear that you are not feeling well. I can remember the doctors telling me that it was all in my head when I was ill (90 some pounds and I am considered tall). It might be as simple as finding a new physician that you are comfortable with. I know that it is scary, but it is really important to let your physician know how you are feeling. Was the physician that mentioned that you have many medical issues the same one that prescribed the medication? If not, do you feel any more comfortable talking with that person?
Praying that you feel better soon,
anon171
anon171
Hello everyone, the doctor who has acknowledged the multiple problems has prescribed me medications in the past. A specialist deals with my asthma medications.
But other issues (mental health medication, iron deficiency medications, etc) are dealt with by her (my GP).
She is a very friendly woman, but I guess I'm a little frustrated sometimes with how she seems a bit naive.
My recent appointment with my specialist has put me in an even more awkward situation. My kidney function has unfortunately declined further and there is even more blood and proteins present. And still no clues to what is causing it..
my specialist has said at this rate I should consider myself lucky to see my 21st. And that it's not likely that I'll be fertile once I choose to start trying for children. Which doesn't make me feel much better, but it's somewhat good that he is brutally honest. I might have to go through a procedure called Brochial Thermoplasty in order to prolong my life and its quality. (Basically burning away all my smooth muscles in my lungs, it causes significant damage, but it is meant to significantly improve breathing in cases like mine). I guess it's a little bit of a Russian roulette waiting game.
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